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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms of Mito
      • Treatment for Mito
      • Diagnosing Mito
      • Mito FAQs
      • Mito in the News
    • Diagnosis & Care
      • Mitochondrial Disease Diagnosis
      • Find a Mito Doctor
      • Mito Disease Treatment
      • Mito Cocktail
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Mito Life Hacks
      • Mito Resources
      • Living with Mitochondrial Disease
      • Care Coordination & Management
      • Managing Your Energy
      • Traveling with Mito
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAODs
      • Symptoms of FAODs
      • Diagnosing FAODs
      • Treatment for FAODs
    • FAOD Programs & Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Resources
      • FAOD Life Hacks
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    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
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Mito Resources

No matter where you are on your journey with mitochondrial disease, MitoAction is committed to connecting you with the most comprehensive resources available as well as a network of support.

No matter where you are on your journey with mitochondrial disease, MitoAction is committed to connecting you with the most comprehensive resources available as well as a network of support. We exist to help you on your journey and to ensure you that you are not alone. Whether you are newly diagnosed, still unsure of your diagnosis, caring for a child living with mito, or a caregiver, family member, or friend, we are here for you. 

Our comprehensive catalog of resources span from practical daily tips to information that may be helpful to a clinician seeing a mito patient for the first time. We aim to empower you to take control of your care and to be your own advocate while surrounding you with a like-minded community who are here to support you.

MitoAction Resources

  • Mito New Patient Kit
  • Mito Support Calls
  • Monthly Expert Series
  • Energy in Action Podcast Series
  • MyMito Mobile App
  • MitoAction Events Calendar
  • Disability Benefits & Planning Resources
  • Newsletter Sign-Up

Self Care and Mental Health

  • Caring for Yourself Before, During and After Your Next Doctor Visit
  • “After The Shock: Getting You Back On the Road to Resilience When Crisis Hits You Head On”
  • “Breath Taking”
  • Grief and Mito
  • Accessible Mindfulness, Meditation & Yoga Resources
  • Dr. Nierenburg Expert Series
    • “Physchiatric Disorders and Mitochondrial Disease”
    • “Mitochondria and Psychiatry”

Doctor Visit(s) Resources

  • Find a Doctor
  • Navigating Illness with Mito: Protocols, Planning for Emergencies, etc.
  • How to Prepare for Your/Your Loved One’s Next Doctor’s Visit!

Parent Resources

  • Parenting a Child with a Rare Disease Tip Sheet & Resource Page

Accommodations in School

  • Understanding Mito in the School World (Energy 4 Education Video):
  • Mito and the School System by Age
  • IEPs and 504s and so Much More

Clinical Trial Information

  • Clinical Trials

Working with Mito

  • Working with Mito Disease (Energy in Action Podcast)

Child Resources

  • Superhero Mask
  • You Are a Superhero
  • Mito Man Coloring Page

Service Dog Resources

  • Service Dog Provider List
  • ICAN Service Dog Provider IN
  • Can Do Canines

Upcoming Events

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Jun 15
All day

Celebrate Father’s Day

Jun 17
8:30 pm

Our Space: A space for young adults with Mito and FAODs to connect and network

Jun 18
7:00 pm

MitoChampions Meeting

View Calendar

Expert Series

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There are no upcoming events.

Last Presentation

Expert Series: Serial Casting and Toe Walking
Presented April 25, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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