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Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.

Support

Providing families, patients, and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.

Educate

Increasing the understanding of mitochondrial disesase by providing access to the most up-to-date and accurate information available.

Advocate

Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

Most Requested Resources

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Our Impact at a Glance

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plus Mito411 Support Calls logged in 2019

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years serving families facing the daily struggles of mitochondrial disease

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plus mito kids sent to summer camp since 2009

Make a Difference

vol-un-teer – a person who freely offers to take part in an enterprise or undertake a task, often followed by a rush of happiness at knowing you’ve made a difference!

Volunteer

Follow us on Social Media

New Energy in Action Podcast Alert! 🎧⁠ EP: 37 Patient Teacher program ➡️ with Jake Athoe

People remember stories better than they do facts.VMP Genetics believes that clinicians are more likely to recognize a patient with a metabolic disorder if they have already seen or heard ...about such a case before. Using patients and caregivers to tell their stories, experience is a proven technique to ensure understanding.

Listen on our website (link in bio > Energy in Action Podcast⁠), Amazon Music, Spotify, Apple Podcasts, or Google Podcasts.
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#mitoaction#mitochondrialdisease #raredisease #rarediseasepodcast #energyinaction #rarediseasecommunity #rarediseaseparent #rarediseaseadvocacy #rarediseaseawareness

New Energy in Action Podcast Alert! 🎧⁠ EP: 37 Patient Teacher program ➡️ with Jake Athoe

Listen on our website (link in bio > Energy in Action Podcast⁠), Amazon Music, Spotify, Apple Podcasts, or Google Podcasts.

#mitoaction #rarediseasepodcast #energyinaction

New Energy in Action Podcast Alert! 🎧⁠ EP: 37 Patient Teacher program ➡️ with Jake Athoe

People remember stories better than they do facts.VMP Genetics believes that clinicians are more likely to recognize a patient with a metabolic disorder if they have already seen or heard ...about such a case before. Using patients and caregivers to tell their stories, experience is a proven technique to ensure understanding.

Listen on our website (link in bio > Energy in Action Podcast⁠), Amazon Music, Spotify, Apple Podcasts, or Google Podcasts.
.
.
.
.
.
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#mitoaction#mitochondrialdisease #raredisease #rarediseasepodcast #energyinaction #rarediseasecommunity #rarediseaseparent #rarediseaseadvocacy #rarediseaseawareness

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