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Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.

Support

Providing families, patients, and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.

Educate

Increasing the understanding of mitochondrial disesase by providing access to the most up-to-date and accurate information available.

Advocate

Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

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Our Impact at a Glance

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plus Mito411 Support Calls logged in 2019

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years serving families facing the daily struggles of mitochondrial disease

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plus mito kids sent to summer camp since 2009

Make a Difference

vol-un-teer – a person who freely offers to take part in an enterprise or undertake a task, often followed by a rush of happiness at knowing you’ve made a difference!

Volunteer

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Checkout our podcast, Energy in Action this Wednesday to listen to Ultragenyx share how the company entered into LC-FAOD research, its research efforts, and how LC-FAOD patient voices and community engagement are central to the planning, implementation, and advancement of Ultragenyx research and ...programs.

Checkout our podcast, Energy in Action this Wednesday to listen to Ultragenyx share how the company entered into LC-FAOD research, its research efforts, and how LC-FAOD patient voices and community engagement are central to the planning, implementation, and advancement of Ultragenyx research and ...programs.

Happy Mother’s Day to all our mito moms!! Whether you are a patient yourself or care for a child with mito, today we celebrate you! 💚

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