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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Mito Life Hacks
      • Mito Resources
      • Living with Mitochondrial Disease
      • Care Coordination & Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Life Hacks
      • FAOD Resources
  • Programs & Support
    • Patient & Family Support
      • Mito411
      • Support Calls
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • MitoChampions
      • Positive Peach Packages
      • Liney’s Lovies
    • MitoAction Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund & Scholarship
      • Marcel’s Way Family Fund
      • MitoArtisan’s Playtime
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Planning & Preparation
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate
      • Honor and Memorial Giving
      • Another Helping
      • Matching Gifts
      • Shop for MitoAction
      • Giving Tuesday – Ways to Give
    • Events
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • MitoChampions
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Light a Light
      • Open Mito Mic & Art Show
  • About MitoAction
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
    • Newsletter Signup
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I Think I Have Mito. Now What?

We’ve gathered all the basic information in one place, including educational resources, diagnosis information, clinical trial information, and more. Get Started

Need Support on your Journey with Mito?

Call 1-888-MITO-411 to speak with an experienced volunteer, or check out our Events Calendar for upcoming support group meetings.

Giving Tuesday – Give the Gift of Hope to Mito Families!

This holiday season, give the gift of hope to a mito kid in need. By donating for Giving Tuesday, you’ll fuel MitoAction’s core mission or its most impactful programs like Dalia’s Wish and the Matthew Harty Camper Fund.
Donate Today Learn More

Finally, an App for Mitochondrial Disease!

MyMito is app designed to help you or someone you care for manage mito. It’s the first and only HIPAA-compliant digital health platform designed for managing life with mito!
Learn More

Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.  We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.

Support

Providing families, patients and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.

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Educate

Increasing the understanding of mitochondrial disease by providing access to the most up-to-date and accurate information available.

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Advocate

Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

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MitoAction Programs & Support

Mito411
Monthly Expert Series
MyMito App
Support Calls
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Our Impact
At a Glance

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1,800+

Mito411 Support Calls logged in 2022

18+

years serving families facing the daily struggles of mitochondrial disease

45+

scholarships granted to young adults with mito pursuing a college degree

Upcoming Events

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Nov 19
8:30 pm - 9:30 pm

Our Space: A space for young adults with Mito and FAODs to connect and network

Nov 20
7:00 pm - 9:00 pm

Monthly MitoChampions Meeting

Nov 21
3:00 pm - 4:30 pm

FAOD Monthly Afternoon Support Call

View Calendar

Expert Series

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Jan 10
12:00 pm - 2:30 pm

2025 Mito Town Meeting

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Last Presentation

Expert Series: Managing the Highs and Lows of Mitochondrial Disease: a review and updates on diabetes and hypoglycemia
Presented September 11, 2024

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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