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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms
      • Treatment
      • Mito FAQ’s
      • Mitochondrial Disease News
    • Diagnosis & Care
      • Diagnosing Mitochondrial Disease
      • Find a Mito Doctor
      • What is a Mito Cocktail?
      • Mito Sick Protocol
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Living with Mitochondrial Disease
      • Care Management
      • Managing Your Energy
      • Traveling with Mito
      • Navigating COVID-19
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAOD
      • Symptoms
      • Diagnosis
      • Treatment
    • FAOD Programs and Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • FAOD Resources
      • International Metabolic Conference
  • Programs & Support
    • Support
      • Mito411
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • MitoChampions
      • Support Calls
      • Positive Peach Packages
    • Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund
      • Marcel’s Way Family Fund
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Resources & Planning
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate
      • Honor and Memorial Giving
      • Another Helping
      • Matching Gifts
      • Shop for MitoAction
      • Giving Tuesday – Ways to Give
    • Events
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • MitoChampions
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Light a Light
  • About Us
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
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I Think I Have Mito. Now What?

We’ve gathered all the basic information in one place, including educational resources, diagnosis information, clinical trial information, and more. Get Started

Need Support on your Journey with Mito?

Call 1-888-MITO-411 to speak with an experienced volunteer, or check out our upcoming support group meetings.

Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.  We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.

Support

Providing families, patients and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.

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Educate

Increasing the understanding of mitochondrial disease by providing access to the most up-to-date and accurate information available.

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Advocate

Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

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MitoAction Programs & Support

Mito411
Monthly Mito Expert Series
MyMito App
Weekly Support Calls
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Our Impact
At a Glance

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1,800+

Mito411 Support Calls logged in 2022

18+

years serving families facing the daily struggles of mitochondrial disease

45+

scholarships granted to young adults with mito pursuing a college degree

Upcoming
Events

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Oct 5
6:00 pm - 7:00 pm Event Series

CPEO & Me

Oct 6
1:15 pm - 2:15 pm

Weekly Support Call

Oct 10
8:30 pm - 9:30 pm Event Series

Our Space: A space for young adults with Mito and FAODs to connect and network

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Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

View Calendar

Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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