I Think I Have Mito. Now What?

We’ve gathered all the basic information in one place, including educational resources, diagnosis information, clinical trial information, and more. Get Started

Need Support on your Journey with Mito?

Call 1-888-MITO-411 to speak with an experienced volunteer, or check out our Events Calendar for upcoming support group meetings.

Join us for the 2025 International Metabolic Conference!

The International Metabolic Conference for families and individuals impacted by Fatty Acid Oxidation Disorders is a premier event dedicated to advancing the knowledge and collaboration for patients, clinicians, and researchers. Learn more about FAODs, current research and treatment, and connect with others in the FAOD community.
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Celebrate The Fathers in Your Life!

This Fathers’s Day, we’re honoring the incredible parents in our mitochondrial disease community—the fierce advocates, tireless caregivers, and everyday heroes who show up with love and strength, no matter the challenges. When you make a donation in honor of a special parent in your life—whether it’s your own parent, a family friend, or a mito parent in need of a little extra love—we’ll send them a small, heartfelt gift to brighten their day!
Make a Donation

High School brings new challenges for kids with mito and higher expectations from educators.

2025 Matthew Harty Camper Fund Scholarship Are Open!

The Matthew Harty Scholarship was established in 2015 to honor the life of Matthew Harty, a North Andover, MA, boy who passed away from mitochondrial disease just days after his 8th birthday. Scholarships are awarded to high school seniors or currently enrolled college students with a diagnosis of mitochondrial disease.
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Finally, an App for Mitochondrial Disease!

MyMito is app designed to help you or someone you care for manage mito. It’s the first and only HIPAA-compliant digital health platform designed for managing life with mito!
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Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.