I Think I Have Mito. Now What?

We’ve gathered all the basic information in one place, including educational resources, diagnosis information, clinical trial information, and more. Get Started

Need Support on your Journey with Mito?

Call 1-888-MITO-411 to speak with an experienced volunteer, or check out our Events Calendar for upcoming support group meetings.

Register for the Externally Led Patient-Focused Drug Development Meeting on MELAS

MitoAction is honored to host an Externally Led Patient-Focused Drug Development (PFDD) meeting focused on MELAS. The virtual meeting will be held on February 10, 2026, and is open to all members of the mitochondrial disease community, including patients, caregivers, clinicians, researchers, and industry partners.
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Finally, an App for Mitochondrial Disease!

MyMito is app designed to help you or someone you care for manage mito. It’s the first and only HIPAA-compliant digital health platform designed for managing life with mito!
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Derby Day – Save the Date!

Mark Your Calendars! This year’s Sandra K. Russell Derby Day Benefit for Mito will be on Saturday, May 2, 2026, and will be held at a new location — The Revere Hotel Boston Common! Details and Registration coming soon.

Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.