Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.  We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.


Providing families, patients, and caregivers opportunities to connect with others who share common experiences with mitochondrial disease.


Increasing the understanding of mitochondrial disesase by providing access to the most up-to-date and accurate information available.


Empowering the mitochondrial disease community with the tools needed to let their voices be heard for their individual healthcare needs.

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Our Impact at a Glance

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plus Mito411 Support Calls logged in 2019


years serving families facing the daily struggles of mitochondrial disease


plus mito kids sent to summer camp since 2009

Make a Difference

vol-un-teer – a person who freely offers to take part in an enterprise or undertake a task, often followed by a rush of happiness at knowing you’ve made a difference!


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