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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Patient & Family Support

MitoAction Memories

Whether your loss was recent or years ago, we offer support to parents, family members and loved ones who are navigating the grief process.

MitoAction

The MitoAction Memories group was created to offer support for those who have lost a loved one to mitochondrialRelated to the mitochondria. disease.  Whether your loss was recent or years ago, we hope to be a support to parents, family members and loved ones who are navigating the grief process. You can connect with MitoAction and others on our closed MitoAction Memories Facebook page. You can also email us at memories@mitaoction.org, whenever you need us to wrap our arms around you or your family.

Join us on our MitoAction Memories Facebook Page as we go live on the third Thursday of each month.  You can participate in the support conversation or just listen in.

MitoAction wants to help you remember those you have lost to mitochondrial disease and ask that friends and family “Light a Light” in their memory.  Please send your photos and memory wishes to us at sydney@mitoaction.org.

For our loved ones we miss so dearly, we light a light and remember you.

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    Light a Light for Mito

    Abigail “Abby” Renee Kasuba

    April 16, 2000 – March 10, 2009

    Adrian Corona

    April 17, 2017 – July 18, 2017

    Aidan Antonio Calatayud

    November 29, 2004 – August 16, 2022

    Aiden Yong-Yeon Lee

    April 3, 2006 – November 6, 2014

    AJ

    Alex Schumacher

    April 7, 2003 – October 4, 2014

    Alicia J. Hobley

    April 8, 2008 – June 3, 2010

    Allen C. Edwards

    April 29, 2014 – March 23, 2017

    Allen Cannon Edwards

    April 29, 2014 – March 23, 2017

    Allie Remarski

    December 26, 1988 – October 5, 2013

    Alyson “Aly” Schwenk

    February 8, 1981 – April 13, 2015

    Alyssa Brooke Douglas

    May 21, 1996 – August 5, 2014

    Amy Jeannie

    May 23, 2014 – March 13, 2016

    Andrew Whalen

    October 5, 1976 – June 22, 2003

    Anneliese

    Archer Banjo Cleary

    September 6, 2012 – April 26, 2013

    Ariana Elizabeth Beaumier

    April 24, 2013 – November 18, 2013

    Arihanna K. Woodall

    June 21, 2011 – December 8, 2013

    Ashley Lauren Hoppes

    February 13, 1992 – March 22, 2012

    Aspyn Block

    November 14, 2001 – July 15, 2002

    Audrey Elizabeth Lawrence

    August 10, 2001 – May 12, 2008

    Autumn Ruth Kenney

    June 11, 2008 – May 31, 2015

    Ava Merrill

    July 8, 2014 – March 17, 2015

    Bella Stanley

    December 31, 2008 – September 20, 2019

    Bethany Lewallen

    November 25, 1995 – October 12, 2015

    Bob Boyle

    Bonnie Codier

    Brady Hackbarth

    April 29, 2005 – September 1, 2011

    Brady Waddick

    Brandon Harris

    January 31, 2003 – June 8, 2012

    Brayden Burge

    September 29, 2004 – October 11, 2013

    Brenan Alijah Petty

    November 6, 2013 – October 8, 2014

    Bridget Lucille Nuccitelli

    July 18, 2007 – September 15, 2007

    Brielle Lana Harmon

    November 22, 2011 – October 19, 2014

    Briony

    Brody Tucker

    April 25, 2007 – March 7, 2009

    Bryce Alexander Caldwell

    April 17, 2006 – December 30, 2008

    Caleb Jason Jacobs

    April 29, 2010 – September 9, 2012

    Carl Mason

    October 27, 1992 – January 23, 2013

    Caroline Pereira Duraes

    May 16, 2001 – September 4, 2011

    Carter Buffum

    – May 19, 2016

    Carys Karpp

    April 23, 2004 – April 13, 2013

    Chance Nathaniel Spurlock

    February 23, 2007 – November 28, 2007

    Chase Ryan Donnelly

    January 1, 2009 – July 6, 2010

    Christopher Joseph Caldwell

    November 6, 2001 – December 20, 2007

    Claire Giles Crittenden

    March 25, 2003 – April 25, 2008

    Colten Lee Abell

    August 7, 2015 – December 28, 2016

    Connor Scott Millard

    March 1, 1999 – September 18, 2007

    Connor Troy

    June 30, 2000 – April 16, 2013

    Cooper Jackson Casavan

    July 16, 2007 – October 12, 2013

    Cooper Roy Watson

    June 4, 2010 – May 29, 2011

    Corynna Strawser

    April 28, 1997 – December 11, 2013

    Daithì Hasson O’Doherty

    November 5, 2014 – March 5, 2016

    Danica Wilson

    March 25, 2010 – December 17, 2015

    Danielle Laurine Jollimore

    June 16, 2011 – July 27, 2019

    David Bowen

    Declan Arthur Gardner

    August 30, 2011 – September 2, 2011

    Desmond Gray

    Diego

    Diego F. Lumauig

    September 14, 2006 – August 14, 2014

    Dominic Angelo Nuccitelli

    April 16, 2001 – September 14, 2001

    Elias Wezowicz

    February 1, 2006 – November 22, 2015

    Ellie Brooke Wilkinson

    March 5, 2007 – January 25, 2011

    Emily Kathryn Rivers

    February 18, 1992 – May 10, 2014

    Emma Frances Dalton

    September 22, 2010 – April 17, 2011

    Enis Almonte

    Eric Jason Cooper

    December 28, 1979 – January 7, 1996

    Eric Thomas Clement

    November 28, 2006 – November 26, 2012

    Erin Elyse Flynn

    September 29, 1984 – February 7, 2014

    Erin Flynn

    September 29, 1984 – February 7, 2014

    Ezra Noah MacElroy

    March 10, 2020 – April 20, 2021

    Frankie Gordie Kirkby

    Gabriel Ruebelmann

    April 25, 2005 – April 15, 2015

    George Charles Garman

    September 9, 2009 – January 29, 2010

    Gerald Sacunas

    May 1, 1956 – May 14, 2017

    Glenn Hodges Floyd

    October 8, 1942 – August 10, 1999

    Grace Caskey

    March 6, 2005

    Hans-Joachim Kirsch

    Harley “Honey Bear” Kayleen Carson

    January 15, 2018 – August 24, 2009

    Hayden Anthony Hamilton

    March 5, 2008 – June 13, 2011

    Heather Grace Coleman

    September 25, 2002 – September 16, 2005

    Heather Grace Coleman

    September 25, 2002 – September 16, 2005

    Isaac Farooq Malik

    September 27, 2008 – January 24, 2010

    Isaac Farooq Malik

    September 27, 2008 – January 24, 2010

    Isabel Eryn

    January 21, 2001 – March 29, 2001

    Isabella Carreiro

    August 23, 2002 – July 28, 2010

    Isla Elizabeth Watson

    May 15, 2013 – April 8, 2014

    Jack Jensen

    January 17, 2006 – February 3, 2007

    Jack Thomas Edwards

    July 8, 2008 – September 7, 2012

    Jack Thomas Edwards

    July 8, 2008 – September 7, 2012

    Jackson Thomas Feliciano

    October 5, 2007

    Jacob Hallberg

    Jacob Nicholas Wright

    December 6, 2010 – April 20, 2012

    Jacob Wright

    December 6, 2010 – April 20, 2012

    James “Bubba” Charles Ament

    December 13, 1995 – August 21, 2010

    Jane Windish

    April 24, 2003 – April 11, 2011

    Jason Brindle

    January 26, 1971 – April 7, 2011

    Jaycob Alexander Harris

    May 9, 2008 – February 15, 2013

    Jaycob Alexander Harris

    January 31, 2012 – June 30, 2013

    Jayden Rieffel

    December 23, 2010 – September 23, 2012

    Jennifer Lee Patrick

    July 21, 1986 – November 16, 1986

    Jimmy “The Big Guy” McKay

    November 2, 2006 – December 27, 2007

    Johnathan Gabriel Cunard

    June 16, 2011 – July 27, 2019

    Jonah Vernon Ritterbush

    February 3, 2013 – April 11, 2013

    Jonathan Ruby

    Joshua Klingler

    February 26, 2013 – December 2, 2014

    Julian R. Fonville

    October 30, 2009 – February 7, 2012

    Juliet Christina

    September 1, 2014 – September 5, 2020

    Kaidon Andrew Stamper

    October 24, 2003 – April 24, 2013

    Kain Gregory Buell

    August 9, 2004 – September 2, 2014

    Kaitlynn Chisenall

    Karina Milenova Kireva

    March 30, 2013 – November 14, 2013

    Katelyn Shumaker

    May 24, 1999 – October 10, 2007

    Katelynn Joselle Misola

    May 29, 2011 – February 24, 2015

    Katherine “Kate” McAleer-Johnson

    May 15, 1987 – December 10, 2020

    Kathryn “Katie” Nicole Cole

    December 28, 1994 – June 15, 2017

    Kayla Marie Dawn O’Flynn

    July 22, 1990 – July 14, 2005

    Kayla Marie Dawn O’Flynn

    July 22, 1990 – July 14, 2005

    Keegan Lajlim Yang

    July 2, 2016 – January 7, 2017

    Kelci Shigeta

    December 7, 2008 – August 31, 2013

    Kellan Reynolds

    January 28, 2011 – July 2, 2020

    Kennedy Lynn Burgess

    September 12, 2001 – May 6, 2016

    Khristen Abshire

    – March 9, 2013

    Kirkland Kilbride

    March 6, 2001 – December 2, 2007

    Kody Weatherford

    November 2, 1992 – January 27, 2020

    Kristen Charleston

    January 1, 1993 – August 29, 2011

    Krysta D’Nea White

    June 7, 1998 – January 16, 2014

    Kyle Weatherford

    November 2, 1992 – April 3, 1999

    Laney Daniel

    November 29, 1985 – March 25, 2016

    Lauren Benney

    October 1, 2001 – March 20, 2012

    Lauren Francis

    March 23, 2006 – June 16, 2014

    Leah Patience Beaumier

    March 10, 2015 – March 15, 2015

    Leah Raquel Lucia

    February 17, 2011 – June 6, 2013

    Leanna Haddad

    May 5, 1997 – March 20, 2005

    Leela Row

    July 25, 2013 – August 7, 2014

    Leo Donald Fortunato

    April 5, 2007 – April 22, 2008

    Leslie Cora Whitt-Williams

    June 17, 1988 – October 21, 2012

    Leslie Whitt-Williams

    June 17, 1988

    Levi Jacob Kendall

    September 30, 2012 – August 21, 2013

    Lucas Dunton

    February 16, 2010 – April 5, 2021

    Mack Michael Harrington

    July 25, 2007 – September 22, 2009

    Madelaine Martin

    June 1, 1997 – December 27, 2017

    Madeline “Kate” Stephens

    April 17, 2001 – July 13, 2008

    Madison Grantham

    July 29, 2004 – August 3, 2006

    Maggie Agnew

    June 18, 2008 – February 26, 2011

    Maiya Blackmon

    October 15, 2015 – April 2, 2016

    Mamie Rose

    Mannix Mags Agnew

    February 10, 2013 – June 12, 2014

    Marti Hall

    Marvin

    March 30, 1999 – September 5, 2005

    Matthew Lee Dugas

    April 6, 2005 – April 20, 2015

    Maud Mary Adams Fullerton

    January 22, 2016 – September 24, 2005

    Melani Rebekah Mehana Fu

    March 7, 2008 – January 29, 2012

    Michael C. Vassallo

    March 9, 1973 – March 24, 2015

    Michaela Rae

    July 8, 1993 – November 4, 2003

    Morgan Danielle Gilbreath

    August 5, 2002 – November 8, 2014

    Nathan Mowrer

    Noah

    Noah C.K. Kaawaloa

    December 16, 2004 – June 11, 2007

    Oliver Henry Fleming

    July 10, 2009 – January 12, 2014

    Olivia McCormick

    August 24, 2010 – October 31, 2013

    Owen Stump

    August 12, 2006 – May 26, 2010

    Patricia Mary Smith (nee Hunter)

    July 25, 1929 – December 14, 1980

    Rachel Anne Flynn

    January 25, 2001 – March 18, 2009

    Raelynn Musacco

    September 16, 2006 – October 15, 2008

    Randi Evans

    Rebekka Maelynn Sallee

    February 13, 2004 – September 18, 2016

    ReeNa Holleran

    June 8, 1989 – March 30, 2009

    Rina Goldberg

    Robert Donal Devine

    Robert Graham Collins

    November 17, 2015 – January 24, 2017

    Ruth Crane

    September 19, 1933 – January 2, 2012

    Ryan Mason Donnelly

    September 10, 2006 – May 1, 2008

    Sabrina “Precious Angel”

    August 29, 2000 – August 1, 2008

    Sailor Isabel Assis

    July 23, 2015 – June 10, 2016

    Samantha Schichtel

    July 18, 2006 – July 25, 2010

    Samuel Cutliff

    September 10, 2012

    Samuel Cutliff

    Samya Haddad

    March 17, 1994 – December 10, 2002

    Sandra K. Russell

    May 5, 1956 – August 6, 2008

    Sara Montgomery

    Scott

    Scott

    August 27, 1973 – September 19, 1985

    Scott Vernon

    August 27, 1973 – September 19, 1985

    Sharon Perkins

    December 5, 1967 – August 13, 2013

    Shayla Cecilia Strobhar

    July 29, 2002 – May 17, 2014

    Sophia Beatriz

    October 17, 1998 – December 11, 1998

    Sterling Curran Smith

    June 4, 2012 – April 8, 2013

    Susan Douglass

    August 25, 1958 – August 28, 2020

    Taylor Renee Lawhead

    February 11, 2011 – June 2, 2013

    Una Pozon

    February 19, 2008 – May 21, 2015

    Wardell Williams-Gray

    February 15, 1991 – December 31, 2001

    William Chandler Brown

    William Reed Jr.

    William Tuthill Dickerson

    May 8, 1991 – April 12, 1994

    Wyatt Daniel DeStephano

    July 23, 2002 – September 27, 2013

    Upcoming Events

    View All
    Sep 10
    11:00 am

    POLG Support Call

    Sep 10
    8:15 pm

    FAOD Support Call

    Sep 11
    12:00 pm - 1:00 pm

    Expert Series: NARP: Understanding the Spectrum of Disease

    View Calendar

    Expert Series

    View All
    Sep 11
    12:00 pm - 1:00 pm

    Expert Series: NARP: Understanding the Spectrum of Disease

    View Calendar

    Last Presentation

    Expert Series: Understanding the FALCON Study: Investigating a Potential Therapy for Mitochondrial Disease
    Presented August 17, 2026

    MitoAction

    P.O. Box 310
    Novi, MI 48376
    (888) 648-6228
    info@mitoaction.org

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