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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
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Education

Learn more about the current state of diagnosis, symptoms, treatment, clinical trials and day-to-day living with mitochondrialRelated to the mitochondria. disease.

Monthly Expert Series

Educational webinars that feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts.

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Wondering Wednesdays

Genetics can seem complicated. We help make it easy to understand in these informal, non-recorded sessions with genetic counselor and Mito Advocate Devin Shuman.

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Energy in Action Podcast

Get a glimpse into the lives of families affected by mitochondrial disease and get the latest information on clinical trials, diagnosis, disease research, and the advancement of therapies.

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Energy 4 Education

Improve your child’s chances of success in school by collaborating with others and learning how to best support your child or teen with mitochondrial disease.

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Group Meeting at 2022 International Metabolic Conference

Patient Education Forums

Patient Education Forums are live events designed to connect patients with one another and clinicians who can answer questions about mito.

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Presentation at 2022 International Metabolic Conference

International Metabolic Conference

Learn about disease management, current clinical trials, and nutrition from a variety of speakers including medical professionals, dietitians, social workers, advocates and genetic counselors.

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Upcoming Events

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May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 11
All day

Celebrate Mother’s Day

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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