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MitoAction

MitoAction

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Jessica Riviere, MHS

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Jessica Riviere, MHS leads Global Patient Advocacy and Patient Engagement at Ultragenyx, where she and her passionate team forge strategic alliances with diverse patient advocacy groups to understand patient and caregiver perspectives across the drug discovery continuum.  Her passion is building capacity that enables groups to be inform drug discovery, drive disease awareness campaigns, support equitable access to care and treatment and co-create meaningful support services for people impacted by disease and their caregivers.

Early in Jessica’s career she worked on advancing the Clinton Healthcare Plan as a legislative aide to U.S. Senator Edward Kennedy.  It was during her tenure at Kennedy’s office that Jessica came to appreciate the power of communities to make change and impact public policy for the greater good.

Jessica’s advocacy experience spans multiple rare diseases, diabetes, HIV/AIDS and immunology with several companies including Biogen, AbbVie, Bristol Myers Squibb and Novo Nordisk.

Jessica holds a BA in Psychobiology from Mount Holyoke College and a Masters of Health Science in Health Policy from the John Hopkins Bloomberg School of Public Health.

Upcoming Events

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May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 11
All day

Celebrate Mother’s Day

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

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Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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