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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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School Tips for Kids with Mito

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Kids with Mito are complex. Navigating the educational system is also complex. Often parents are wonderful advocates but don’t know or understand the law. How can parents help their kids get the most out of their school experience?

We will tackle these questions and address the myths and obstacles in our interactive and informative discussion.

Sound too familiar?

  • My child’s teachers just don’t get it.
  • Why have an IEPThe skills that need to be taught by an educator or related services professional so that the child's educational needs are met. vs. a 504?
  • What is OHI and why is it important for kids with Mito?
  • What are some real-life examples of accomodations and modifications for my child?
  • What am I allowed to ask for? What are our rights?
  • Do I need to pay for outside evaluations in order to get services for my child?
  • The school told me they don’t accept that diagnosis.
  • The school wants to help but they say they just don’t have the resources to offer therapies for my child.
  • Maybe homeschooling is the best option….
Listen Now View Slides

About the Speaker

Cristy Balcells, RN, MSN

Cristy Balcells, RN, MSN

Cristy Balcells is MitoAction’s executive director. She is the author of the book “Living Well with Mitochondrial Disease” and is a master’s degree level registered nurse whose daughter also has the disease.

Upcoming Events

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May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 11
All day

Celebrate Mother’s Day

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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