MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
Calendar of Events
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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Making Our Way Through the Shifting Sands of Change
Making Our Way Through the Shifting Sands of Change
Managing change is something that our rare disease community is quite familiar with, as we are often forced to grapple with the “unknowns” that present themselves every day. Change, whether good or bad, can feel jarring, unstabilizing and challenge us in our ability to respond. Whether you are navigating a new symptom, new diagnosis, new […]
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Expert Series: Hope on the Horizon: The Vital Role of Patients in Clinical Research
Expert Series: Hope on the Horizon: The Vital Role of Patients in Clinical Research
There is unprecedented momentum in the mitochondrial disease clinical trial landscape, and the patient community plays a vital role in ensuring these trials have the potential to lead to new and effective treatments. This expert series aims to demystify clinical trial participation and answer your most pressing questions. Dr. Amy Goldstein, Clinical Director of the […]
Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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FAOD Monthly Evening Support Call
FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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Our Space: A space for young adults with Mito and FAODs to connect and network
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […]
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MitoChampions Meeting
MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […]
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Expert Series: Understanding the Pediatrician’s Role in the “Growing Up Years”
Expert Series: Understanding the Pediatrician’s Role in the “Growing Up Years”
When you have a child with a rare disease, who sees so many different doctors, it can feel challenging to know how your pediatrician fits into the picture! How do you use this very special doctor to help you navigate your questions, collaborate with other doctors, and move through the everyday life of navigating a […]
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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MitoArtisan’s Playtime – Course 4
MitoArtisan’s Playtime – Course 4
Creating and connecting with other artists creates healing. Whether you are young or old, a seasoned artist or just curious, we encourage you to join us on February 23rd as we explore art together. Christine Knox, a seasoned illustrator, quilter, artist and MitoChampion, will teach us how to use various drawing materials and share techniques […]
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Wondering Wednesdays with Genetic Counselor
Wondering Wednesdays with Genetic Counselor
*Tonight's session has postponed. Stay tuned for further updates!Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone.
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Weekly Support Call
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized […]
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