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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms of Mito
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    • Diagnosis & Care
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      • Living with Mitochondrial Disease
      • Care Coordination & Management
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    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAODs
      • Symptoms of FAODs
      • Diagnosing FAODs
      • Treatment for FAODs
    • FAOD Programs & Support
      • New Patient Kit
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      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Resources
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  • Programs & Support
    • Patient & Family Support
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      • Dalia’s Wish
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    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
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      • International Metabolic Conference
    • Planning & Preparation
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      • Events Calendar
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      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
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      • MitoAction Memories
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Raise Your Voice

MitoAction’s advocacy resources are designed to assist patients and families in raising their voice and engaging in their community.

ad·vo·ca·cy: The act of pleading or arguing in favor of something, such as a cause, idea, or policy; active support.

MitoAction’s advocacy resources are designed to assist patients and families in raising their voice and engaging in their community. It’s all about making others aware of the challenges and issues that affect patients and families with mitochondrialRelated to the mitochondria. disease.

Take Legislative Action

Mito411 offers patients a direct link to someone who understands by means of a one-on-one phone call.

Learn More

Mitochondrial Disease Awareness Week

Support Calls include a wide array of online support for different groups. Calls range from general support, to specific groups including FAODs, young adults, and men’s calls. There is something for everyone.

Learn More

Open Mic & Art Show

MitoPlaydates helps families with mito children to facilitate chances to interact with other local families on a similar journey.

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MitoAction Memories

MitoAction Memories is aimed at providing the delicate, yet necessary, support to families navigating their grief after losing a loved one.

Learn More

Upcoming Events

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May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 11
All day

Celebrate Mother’s Day

View Calendar

Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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