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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Mito Navigator Toolkit

Communication

Clear and open communication is critical to the management of mito, and can also help avoid allegations of Munchausen’s Syndrome or Medical Child Abuse.

Clear and open communication is critical to the management of mito, and can also help avoid allegations of Munchausen’s Syndrome or Medical Child Abuse.

Clear communication between the patient, caregivers, and medical providers, as well as among the physicians, nurses and therapists who make up the patient’s care team, is critically important to the management of mitochondrialRelated to the mitochondria. disease.  Open lines of communication and strong documentation of medical decisions also help patients and families to avoid allegations of Munchausen’s Syndrome or Medical Child Abuse. Since communication can affect medical treatment and continuity of care so greatly, we have included tips and resources to help families communicate effectively with their medical providers.

Communication Resources

Communicating with Primary Care Physician
Communicating With Medical Professionals in the Hospital
Sharing Research Findings with Professionals

Upcoming Events

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May 8
8:15 pm

FAOD Monthly Evening Support Call

May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

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Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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