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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
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Patient & Family Support

MitoAction Memories

Whether your loss was recent or years ago, we offer support to parents, family members and loved ones who are navigating the grief process.

The MitoAction Memories group was created to offer support for those who have lost a loved one to mitochondrialRelated to the mitochondria. disease.  Whether your loss was recent or years ago, we hope to be a support to parents, family members and loved ones who are navigating the grief process. You can connect with MitoAction and others on our closed MitoAction Memories Facebook page. You can also email us at memories@mitaoction.org, whenever you need us to wrap our arms around you or your family.

Join us on our MitoAction Memories Facebook Page as we go live on the third Thursday of each month.  You can participate in the support conversation or just listen in.

Light a Light for Mito

MitoAction wants to help you remember those you have lost to mitochondrial disease and ask that friends and family “Light a Light” in their memory.  Please send your photos and memory wishes to us at memories@mitoaction.org.

For our loved ones we miss so dearly, we light a light and remember you.

Abigail “Abby” Renee Kasuba

April 16, 2000 - March 10, 2009

Adrian Corona

April 17, 2017 - July 18, 2017

Aidan Antonio Calatayud

November 29, 2004 - August 16, 2022

Aiden Yong-Yeon Lee

April 3, 2006 - November 6, 2014

AJ

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Alex Schumacher

April 7, 2003 - October 4, 2014

Alicia J. Hobley

April 8, 2008 - June 3, 2010

Allen C. Edwards

April 29, 2014 - March 23, 2017

Allen Cannon Edwards

April 29, 2014 - March 23, 2017

Allie Remarski

December 26, 1988 - October 5, 2013

Alyson “Aly” Schwenk

February 8, 1981 - April 13, 2015

Alyssa Brooke Douglas

May 21, 1996 - August 5, 2014

Amy Jeannie

May 23, 2014 - March 13, 2016

Andrew Whalen

October 5, 1976 - June 22, 2003

Anneliese

-

Archer Banjo Cleary

September 6, 2012 - April 26, 2013

Ariana Elizabeth Beaumier

April 24, 2013 - November 18, 2013

Arihanna K. Woodall

June 21, 2011 - December 8, 2013

Ashley Lauren Hoppes

February 13, 1992 - March 22, 2012

Aspyn Block

November 14, 2001 - July 15, 2002

Audrey Elizabeth Lawrence

August 10, 2001 - May 12, 2008

Autumn Ruth Kenney

June 11, 2008 - May 31, 2015

Ava Merrill

July 8, 2014 - March 17, 2015

Bella Stanley

December 31, 2008 - September 20, 2019

Bethany Lewallen

November 25, 1995 - October 12, 2015

Bob Boyle

-

Bonnie Codier

-

Brady Hackbarth

April 29, 2005 - September 1, 2011

Brady Waddick

-

Brandon Harris

January 31, 2003 - June 8, 2012

Brayden Burge

September 29, 2004 - October 11, 2013

Brenan Alijah Petty

November 6, 2013 - October 8, 2014

Bridget Lucille Nuccitelli

July 18, 2007 - September 15, 2007

Brielle Lana Harmon

November 22, 2011 - October 19, 2014

Briony

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Brody Tucker

April 25, 2007 - March 7, 2009

Bryce Alexander Caldwell

April 17, 2006 - December 30, 2008

Caleb Jason Jacobs

April 29, 2010 - September 9, 2012

Carl Mason

October 27, 1992 - January 23, 2013

Caroline Pereira Duraes

May 16, 2001 - September 4, 2011

Upcoming Events

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May 8
8:15 pm

FAOD Monthly Evening Support Call

May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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