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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Patient & Family Support

MitoSocials

Connect with other mito families in your local community to meet, share stories, and give and get support from others with similar experiences.

Our virtual and in-person MitoSocials help connect families with other mito families in their local communities. These low-key, relaxed gatherings allow mito families to meet each other, share stories, give and get support, and realize they’re not alone on this journey. We want to help you get support closer to home, and are hopeful that a MitoSocial will offer just that.

Are you interested in hosting a MitoSocial? It’s easy!

Here’s what you — the host — will do:

  • Secure space for the Social, such as a hospital, church basement, community center, or school and choose a date.
  • Buy snacks and beverages for the event using a stipend from MitoAction.
  • Take care of the day-of setup and cleanup.
  • Send MitoAction photos of your Social, your sign-in sheet, and your receipts.

Here’s what MitoAction will do:

  • Send email invitations to mito patients and families in your area.
  • Manage the RSVPs.
  • Provide a stipend for snacks and beverages.
  • Provide sign-in sheets, name tags, and mito materials to have available at your event.
  • Post photos and a write-up of your Social on our Facebook page.

Find or Host a MitoSocial

Check out our Events Calendar to find and register for upcoming MitoSocials. Can’t find one in your area? Become a MitoSocial host!

Find an Upcoming MitoSocial
Host a MitoSocial in Your Area

Upcoming Events

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May 8
8:15 pm

FAOD Monthly Evening Support Call

May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

View Calendar

Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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