• Facebook
  • Instagram
  • Twitter

Get Support – Call 1-888-MITO-411

  • Shop
  • Events
  • Donate
  • Search
MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms of Mito
      • Treatment for Mito
      • Diagnosing Mito
      • Mito FAQs
    • Diagnosis & Care
      • Mitochondrial Disease Diagnosis
      • Find a Mito Doctor
      • Mito Disease Treatment
      • Mito Cocktail
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Mito Life Hacks
      • Mito Resources
      • Living with Mitochondrial Disease
      • Care Coordination & Management
      • Managing Your Energy
      • Traveling with Mito
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAODs
      • Symptoms of FAODs
      • Diagnosing FAODs
      • Treatment for FAODs
    • FAOD Programs & Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Resources
      • FAOD Life Hacks
  • Programs & Support
    • Patient & Family Support
      • Mito411
      • Support Calls
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • Become a MitoChampion
      • Positive Peach Packages
      • Liney’s Lovies
    • MitoAction Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund & Scholarship
      • Marcel’s Way Family Fund
      • MitoArtisan’s Playtime
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Planning & Preparation
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate to MitoAction
      • Honor and Memorial Giving
      • Matching Gifts
      • Another Helping
      • Giving Tuesday
      • Shop for MitoAction
    • Events
      • Events Calendar
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • Become a MitoChampion
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Open Mito Mic & Art Show
      • MitoAction Memories
  • About MitoAction
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
    • Newsletter Signup
  • Show Search

A LC-FAOD Treatment from Ultragenyx and Available Resources – for US members only

Print Friendly, PDF & Email
https://www.mitoaction.org/wp-content/uploads/2021/08/Ultragenyx-2-Podcast-8-12-21.mp3

Join Energy in Action host, Stephanie Tomlinson as she interviews Bridget Reineking and Sylvia Mills from Ultragenyx Pharmaceutical.

This podcast episode is intended for U.S. members of the MitoAction community. You can learn more about Dojolvi ®(triheptanoin) and find its full Prescribing Information that includes the Patient Information leaflet here.

*This podcast episode is intended for U.S. members of the MitoAction community.*

US Only

About the Speaker

Bridgette Reineking, MS, RDN, CD

Bridget Reineking, MS, RDN, CD is the Senior Director of Global Metabolic Nutrition Programs at Ultragenyx Pharmaceutical, working within the pharmaceutical industry for almost a decade. She has two decades of experience and several publications in the area of inborn errors of metabolism, beginning her passion as a Nutrition Assistant at the Waisman Center, while attending the University of Wisconsin-Madison to receive her undergraduate degree in dietetics. Bridget went on to complete her master’s degree at Case Western Reserve University and practiced clinically at Children’s Hospital of Wisconsin-Milwaukee before joining industry.

Sylvia Mills

Sylvia Mills is the Director of Patient Services, Metabolic Franchise at Ultragenyx and has over two decades of patient advocacy and pharmaceutical reimbursement experience. She has worked with diverse patient populations with rare diseases and is an expert in navigating the reimbursement process. Sylvia is committed to providing exceptional service to patients and healthcare providers by helping ensure access to treatment and lowering barriers to reimbursement.

Upcoming Events

View All
May 11
All day

Celebrate Mother’s Day

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

May 16
12:00 pm

Weekly Support Call

View Calendar

Expert Series

View All
May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

  • Support
  • Resources
  • Donate to MitoAction
  • Events
  • Subscribe
©2025 MitoAction. All Rights Reserved.

Privacy Policy. Terms of Use.