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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Expert Series: Leigh syndrome: A factory for making viruses?

Emily Grandahl Jan 9, 2024

Previously, the McGuire group at NIH reported that children with mitochondrial disease in general experience serious …

[Read more...]

expert series, primary mitochondrial, virus

Expert Series: Stride Study for PMM Patients

Emily Grandahl Dec 20, 2023

Join MitoAction and Dr. Alex Dorenbaum, Chief Medical Officer at Reneo Pharmaceuticals, as they discuss the Stride Study …

[Read more...]

expert series, stem cells

Expert Series: Understanding Upcoming MCADD Trials

Emily Grandahl Nov 7, 2023

There are two new MCADD trials that have started in recent months. One explores the use Dojolvi (triheptanoin) and the …

[Read more...]

brain, expert series, leigh syndrome, stem cells

Expert Series: Ultra-Rare Mitochondrial Diseases: Development Challenges and Opportunities

Emily Grandahl Oct 3, 2023

Join CEO of Stealth Biotherapeutics Reenie McCarthy, and special guest Shelley Bowen, Director of Family Services and …

[Read more...]

barth syndrome, expert series, mitochrondrial-targeted therapies, opportunities, potential solutions, ultra-rare

Expert Series: Modeling mitochondrial diseases with patient-derived stem cells and brain organoids

Emily Grandahl Sep 21, 2023

In this talk, Dr. Alessandro Prigione will discuss how stem cells are generated from patients to derive models of the …

[Read more...]

brain, expert series, leigh syndrome, stem cells

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Last Presentation

Expert Series: Serial Casting and Toe Walking
Presented April 25, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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