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MitoAction

MitoAction

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Back to Raise Your Voice

Mitochondrial Disease Awareness Week

Join the mitochondrialRelated to the mitochondria. disease community September 15-21, 2025 and raise awareness during World Mitochondrial Disease Awareness Week!

During the third week of September (Sept. 15 – Sept. 21, 2025), the global mitochondrial disease community will come together to raise awareness for the annual World Mitochondrial Disease Awareness Week.

Thousands of families face the reality of living with mitochondrial disease. During Awareness Week, MitoAction and mito families from across the globe do their part to educate others about this rare disease.

We believe that awareness is important year-round, but highlighting these issues during Mitochondrial Disease Awareness Week provides a time for people to come together and display the passion and strength of those working to improve the lives of individuals and their families affected by mito. 

There are many ways to get involved during Awareness Week. Check back soon for our 2025 resource guide and toolkit to give you ideas.

To get involved in Awareness Week, email info@mitoaction.org.

Share with us on Facebook the ways in which you are spreading awareness!

Light Up Green for Mito

Light up your home or porch this week with green light bulbs! It’s a great way to show your support and get a conversation about mito started with your neighbors and others in your community.

This year, we’re making it even easier by offering green LED light bulbs right here on our website. Just use the form to the right to order a set of two bulbs for your home.

Print and hand out these flyers or print and put up a yard sign to help get the message out.

Order Your Green Light Bulbs

Each package contains two green LED bulbs for a $15 donation. Use them on your porch or in your home to show your support!

Spread the Word

TK2D Awareness Day

Tuesday, September 9
Share these graphics on your social media to raise awareness of TK2d and the challenges these families face each day.

Learn More

Light a Light for Mito

Wednesday, September 17
Remember those who have lost the battle with mito by “Lighting a Light” in their memory.

Learn More

LHON Awareness Day

Friday, September 19
Join IMP for a webinar to understand the impacts of fatigueThe overall feeling of tiredness or lack of energy. It is not the same as simply feeling drowsy or sleepy. Being fatigued means having no motivation or energy. for patients affected by LHON.

Register

Social Media Graphics

All Week
Download awareness week graphics and share on your social media to help us raise awareness!

Learn More

Upcoming Events

View All
May 11
All day

Celebrate Mother’s Day

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

May 16
12:00 pm

Weekly Support Call

View Calendar

Expert Series

View All
May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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