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Marcel's Way Family Fund

What is the Marcel's Way Family Fund?

The Marcel's Way Family Fund is a program that offers a helping hand in the way of direct financial support to those suffering from mitochondrial disease.

Born out of the mission of continuing to improve quality of life for all affected by Mito, the Marcel's Way Family Fund has the potential to change the lives of many children and families who simply cannot afford the full cost of necessary but expensive things like wheelchairs, adaptive equipment, time lost from work during long hospitalizations, and medicines.

APPLICATIONS FOR ASSISTANCE NOW BEING ACCEPTED

To apply for support, please click below to download and complete the following documents.

Marcel's Way Applicant Cover Letter

Marcel's Way Family Fund Application

Why is a family-assistance program important for someone diagnosed with Mito?

Due to the complexity of the disease, no standards of care exist today for children and adults who have mitochondrial disease. As a result, many things (wheelchairs, medicines, diagnostic tests) that would be 100% covered by insurance or other resource programs for other diseases are not always covered for our Mito families.

It is MitoAction's vision that this program fund will grow so that we can offer support to every family with mitochondrial disease who ever faces an overwhelming need, thus making one part of their difficult journey a little easier.

On behalf of those you will help, we thank you for your support.  Your donation today will go directly to the Marcel's Way Family Fund and will only be used to provide one-time assistance grants to families in need.

Your tax-deductible donation will go directly to the Marcel's Way Family Fund. All donations are used exclusively for family assistance.

Questions? Please email us at mwff@mitoaction.org 

 DONATIONS TO SUPPORT THE MARCEL'S WAY FAMILY FUND MAY BE MADE ONLINE HERE OR MAILED TO:

MWFF c/o MitoAction
PO BOX 51474
Boston, MA 02205

All donations are tax-deductible and will be acknowledged by a receipt from MitoAction, tax id # 55-0899427.
For more information, contact Ginger DeShaney, Director of Operations & Communications, at 1-888-MITOACTION (888-648-6228) or support@mitoaction.org.

Here are comments from some of our happy recipients!

 

PRESS RELEASE

Mitochondrial disease organization accepts grant to develop family assistance program

Boston-based MitoAction will carry on the legacy of the Marcel's Way Family Fund by offering a grants-based family assistance program. The Marcel's Way Family Fund has a history of providing financial support to mitochondrial disease patients and families in need. To date, the Marcel's Way Family Fund has awarded more than $150,000 in grants. Through this grant partnership, MitoAction will continue the good work that Marcel's Way started.

"It is exciting to be able to carry forward the Marcel's Way Family Fund as a new program within MitoAction," said Cristy Balcells, MitoAction's executive director. "The idea of offering financial support to those in need aligns well with MitoAction's mission to improve quality of life for all who are affected by mitochondrial disorders. By building on the Marcel's Way Family Fund along with other existing programs, MitoAction's support, education and advocacy efforts will impact even more people."

MitoAction was founded in 2005 by a group of Boston physicians, patients, and parents whose vision was to create a network of support and resources with immediate impact for patients and families living with mitochondrial disease. Since its inception, MitoAction has developed a variety of programs and resources that serve a global community of Mito patients and families, including a guest speaker series offered by teleconference, patient education podcasts, support groups and family socials, and a peer support hotline.

Marcel's Way president Maria Lussier says, "While we are saddened to dissolve Marcel's Way we are excited about the opportunity to pass on these funds as an ongoing program to MitoAction. It has always been our hope that one day the Marcel's Way Family Fund would be able to help Mito families not just in New England but nationally. By making it a part of MitoAction, it will now be possible for this to happen."

Marcel's Way was founded in 2003 by a group of "Mito Mothers" that came together because they saw that families needed information, education, and support to live as normal of life as possible with their newly diagnosed children suffering from mitochondrial disorders. In 2005, Marcel's Way launched the Marcel's Way Family Fund to help families cover the "extra expenses" they faced to care for their children. Grants were made to assist with the high cost of medications, services and medical equipment.

The board of directors of both nonprofits say that they look forward to the future growth of the Marcel's Way Family Fund, and hope the program will help many patients and families in need across the country. Applications for patients and families are currently available online and will be reviewed on a quarterly basis.