Treatment
The Dosing Debate: CoQ10 and Creatine in mitochondrial disorders
This month MitoAction welcomed Dr. Fran Kendall of Emory University's Department of Human Genetics mitochondrial program to discuss the dosing debate around CoQ10 and creatine.
Listen to the audio recording of the meeting here (right click or save as to download)
- Aug 7, 2008
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Drug Trial begins targeting Mitochondrial Diseases: EXCLUSIVE AUDIO INTERVIEW
Is there hope for a cure for Mitochondrial Disease? Perhaps the answer is closer than we thought.
On July 15, 2008 Edison Pharma and partner Penwest Pharmaceuticals announced that A0001, an "improved" variant of Coenzyme Q10 (CoQ10), has entered Phase 1 clinical development with healthy volunteers. Edison predicts trials in patients with inherited mitochondrial disease will begin in 2009.
- Jul 19, 2008
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Pain
July 11, 2008
MitoAction welcomed Dr. Irina Anselm, pediatric neurologist and head of the mitochondrial disease clinic at Children's Hospital Boston to discuss the topic of pain for patients with mitochondrial disease at our monthly international teleconference.
The following is a transcript of the presentation given by Dr. Anselm:
- Jul 13, 2008
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The Mito Cocktail Explained
During the last MitoAction monthly teleconference on Friday, March 7, 2008, Saad Dinno, RPh, a compounding pharmacist at Acton Pharmacy and Dr. Virginia Tawa, PharmD, discussed the ingredients which make up the mysterious “Mito Cocktail.”
- Mar 10, 2008
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CoQ-10 Update
A conversation with compounding pharmacist Arthur Margolis, September 7, 2007 by teleconference.
Cristy Balcells, Executive Director: Welcome Arthur! We are so glad to have you as part of the call today, as many of our patients struggle to understand about CoQ10. We often hear questions about insurance coverage, best forms to take, ways to get high doses necessary for mitochondrial disease, etc.
- Sep 7, 2007
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