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You Won’t Miss the Fat – Cooking One Meal for the Whole Family

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Join FAOD parents Beth Folcher and Stephanie Harry to explore nutrition and substitutions for stress-free meal-planning that’s inclusive of the whole family. You do not have to sacrifice flavor for good nutrition. Roll up your sleeves and prepare for a cooking adventure, flexibility, and fun.

Watch Presentation

About the Speaker

Beth Folcher

Beth Folcher

Beth Folcher received her M.Ed. In Educational Leadership from Lehigh University in 2002. She had been teaching high school history in the Pennsylvania’s public school system for over 24 years, working with all levels of special needs kids. In 2005, her son Luke was born and diagnosed with LCHAD via NBS.

Stephanie Harry

Stephanie Harry

Stephanie’s son was diagnosed in 2008 with LCHAD deficiency. She spent her son’s early years educating herself through research, journal articles, work groups, and clinicians. She worked alongside her son’s dietitian to publish a children’s book called “My Special Body” geared toward edu- cating young children with LC-FAODs. She is passionate about education, mentorship, and advocacy. In 2022 Stephanie joined the MitoAction team to support the greater mitochondrial community.

“I am so excited to be a part of the MitoAction team! My goal is to always create a safe inquisitive space where people feel loved, listened to and have continued access to meaningful resources. I look forward to connecting with each family and patient, and feel honored to walk this journey with you!”

Contact Stephanie at sharry@mitoaction.org.

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Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

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