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Energy in Action Podcast Episode 149: Creativity and Community: MitoArtisans in Action

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In this episode of Energy in Action, host Marcy Young sits down with Stephanie and Christine to explore how creative expression can support mental health, build confidence, and foster resilience through all stages of the mito journey.

EPISODE HIGHLIGHTS

Stephanie Harry and Christine Knox are two powerhouse voices in the mitochondrialRelated to the mitochondria. disease community, using art as a tool for healing, connection, and empowerment. In this episode of Energy in Action, host Marcy Young sits down with Stephanie and Christine to explore how creative expression can support mental health, build confidence, and foster resilience through all stages of the mito journey. Whether it’s pencil drawings, music, poetry, or pottery, both women emphasize the importance of play, experimentation, and community in living fully with mito.

Stephanie, MitoAction’s Patient Support Coordinator, and Christine, an artist and long-time community leader, share how their own experiences with mitochondrial disease and caregiving shaped their passion for art—and how that passion sparked two of MitoAction’s most beloved creative programs: MitoArtisans Playtime and the annual MitoArt Show. They discuss what these spaces offer for patients of all ages and abilities, why creativity belongs in everyone’s toolbox, and how you can get involved—whether as an artist, observer, or simply someone looking to reconnect with themselves.

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energy in action, mitoartisan's playtime, podcast

About the Speaker

Stephanie Harry

Stephanie Harry

Stephanie’s son was diagnosed in 2008 with LCHAD deficiency. She spent her son’s early years educating herself through research, journal articles, work groups, and clinicians. She worked alongside her son’s dietitian to publish a children’s book called “My Special Body” geared toward edu- cating young children with LC-FAODs. She is passionate about education, mentorship, and advocacy. In 2022 Stephanie joined the MitoAction team to support the greater mitochondrial community.

“I am so excited to be a part of the MitoAction team! My goal is to always create a safe inquisitive space where people feel loved, listened to and have continued access to meaningful resources. I look forward to connecting with each family and patient, and feel honored to walk this journey with you!”

Contact Stephanie at sharry@mitoaction.org.

Christine Knox

Christine Knox

I was born in Alberta, but raised primarily in Victoria, British Columbia Canada. Although, I have lived in most provinces of Canada, including the Arctic. Nature has been a huge part of my life, spending many hours either in the rainforest or at the beach or anywhere else I’ve lived has given me a profound love of nature in all it’s forms. Well maybe not spiders and snakes too much. 

My creativity began with spending hours coloring in coloring books, filling every page very carefully. Then I moved onto my first ‘real’ drawing at about 10 years old. These early drawings were centered around my surroundings and family. Pencils and pencil crayons were the first tools I learned to draw with so it’s not surprising that they have become my preferred medium. Although who knows where I’ll go next. 

My favorite subjects to draw from are animals and nature. Capturing the realistic feeling of fur, the smooth or rough textures found in nature are amazing to be able to portray. I primarily work on a few different surfaces when drawing, Dura-lar, Pastelmat, Bristol Board Paper or Suede Matte Board. 

For most of my adult life I had to concentrate on a regular income so I trained as a floral designer and eventually opened my own floral design studio. When I became ill with Mito at the age of 51, I had to close my business. I felt a deep sense of loss and purpose. I turned to my art to give me that purpose back and allow me to be creative in other ways. I began taking commissions for pet portraits with colored pencil. I’ve also started painting with acrylics again. Being able to have a flexible work schedule definitely works for me with Mito. 

I’m very excited to be able to mentor and share my lifetime of learning with students. I’ve always enjoyed teaching a number of different things, floral design, crocheting, knitting, drawing, crafts and quilting. 

To see some examples of my work you can go to my website: www.christineknox.ca.

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Mar 12
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Mar 20
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Expert Series: Understanding the Current Landscape of Insurance Coverage for Rare Diseases

Apr 3
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Expert Series: An overview of gastrointestinal motility and mitochondrial function

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Last Presentation

Expert Series: Understanding the Current Landscape of Insurance Coverage for Rare Diseases
Presented March 6, 2026

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