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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
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Mary Castro-Summers

Mary Castro-Summers
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Mary is the parent of 3 adult sons.  Her youngest son was born with complex health needs.  For the past 30 years, she has relied on research skills honed as a paralegal with her personal and then professional work experience with the New England Regional Genetics Group, the FIRST Project at the University of Massachusetts Medical School, Family TIES of Massachusetts, and now Franciscan Children’s in Brighton, MA.

As a member of the committee that reviews applications for The Marcel’s Way Family Fund at MitoAction for the past 5 years, Mary has learned of the impact of mitochondrial disease and has assisted many families in finding local community resources to address their needs.

Mary is passionate about community resource information-sharing and making connections among families supporting children and adults who have special health care needs.  She was personally supported by others and enjoys packing back those acts of kindness.  Her motto in this work is, “you may be caring for your loved one by yourself, but you should never feel alone.”

Past Expert Series Presentations

Help is on the Way!

Upcoming
Events

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Jun 4
7:00 pm - 8:00 pm

Traveling with an FAOD

Jun 8
8:15 am - 9:45 am Event Series

FAOD Monthly Support Call

Jun 9
12:00 pm - 1:00 pm Event Series

Weekly Support Call

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Expert
Series

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Upcoming Presentations

Jun 16
12:00 pm - 1:00 pm

Aging with Mito

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Last Presentation

Expert Series: Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d)Expert Series:
Presented May 3, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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