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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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EDUCATION

Energy 4 Education

MitoAction’s goal is to assist parents and their child’s education team to better collaborate and creatively support children and teens living with mito disease.

School success for children with mitochondrialRelated to the mitochondria. disease begins with good communication by all involved parties, including school staff, parents, doctors, PT, OT, speech therapists, and the child when applicable. Clear and open communication increases understanding of how medical providers, parents, and educators can develop a plan which uses accommodationsChanges that remove the barriers to learning. They can also change how and what the children is expected to learn and know. and modifications in school to support a child’s energy demand.

This education focused section aims to improve a child’s success in school by helping parents and the education team to better collaborate and creatively support the child or teen with mitochondrial disease.

To request a free copy of this presentation on DVD, send your request to info@mitoaction.org.

Energy 4 Education Resources

Sample IEPs & Letters

We’ve collected a series of templates that may be helpful for parents, educators and physicians who need to advocate for children with mito. 

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Planning & Early Intervention

A good plan for early development and preschool will help your family as well as your child as he or she attempts to reach basic milestones in development. 

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Preschool can be especially challenging for kids with mitochondrial diseases.

Preschool

Preschool can be especially challenging for mito kids, as they sometimes lag behind in milestones such as walking, sitting, talking, swallowing and self feeding. 

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Elementary School

As your child progresses each year so do the academic expectations of what the child will be held accountable to learn.

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Middle School is a big change for most students. It can be especially challenging as they deal with changing classrooms and having different teachers throughout the day.

Middle School

Middle School is a big change for most students, as they deal with changing classrooms and having different teachers throughout the day.

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High School brings new challenges for kids with mito and higher expectations from educators.

High School

High School brings new challenges for teenagers with mito and higher expectations from educators and adults.

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Young girl sitting at her desk in elementary school. Elementary school presents unique challenges for kids with mitochondrial diseases and their parents.

Mito and the Education System

Children with mito CAN attend school with supportive tools that can help a student maintain health and energy throughout the day. 

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Home schooling can be a valid alternative for parents who are worried that public or private school systems don’t meet the needs of their mito child.

Home Schooling

Home schooling can be a valid alternative for parents who are worried that public or private school systems don’t meet the needs of their mito child. 

Learn More

Art Therapy

Art is a powerful way to help combat depression and stress in children dealing with mito.

Learn More

Upcoming Events

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May 20
All day

Clinical Trials Day

May 21
7:00 pm

MitoChampions Meeting

May 22
12:00 pm - 1:00 pm

FAOD Support: Exploring the Younger Years

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Expert Series

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There are no upcoming events.

Last Presentation

Expert Series: Serial Casting and Toe Walking
Presented April 25, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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