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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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2020 Conference Presentations

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International Metabolic Conference
Dr. Melanie Gillingham
Acylcarnitines: What are They and What Do They Mean?
International Metabolic Conference
Cardiac Issues & FAOD
International Metabolic Conference
Caregiver Panel Discussion
International Metabolic Conference
Disability Benefits & Planning
International Metabolic Conference
Life Transitions from Pediatric to Adult Patients with Rare Disorders
International Metabolic Conference
MyMito App – Taking Control of Your Care
International Metabolic Conference
Dr. Georgianne Arnold
Newborn Screening in FAOD
International Metabolic Conference
Practical Tips from the VLCAD Nutrition Guidelines and Toolkit – Part 1
International Metabolic Conference
Practical Tips from the VLCAD Nutrition Guidelines and Toolkit – Part 2
International Metabolic Conference
Dr. Jerry Vockley
Pre-Clinical Treatment Studies in FAOD
International Metabolic Conference
Preparing For a New Normal in COVID-19 and Being Your Best Advocate
International Metabolic Conference
Dr. Jerry Vockley Dr. Melanie Gillingham
Research & Clinical Trials Update
International Metabolic Conference
Dr. Mark Korson
Sick Day & Emergency Protocols: Helpful and Potentially Harmful
International Metabolic Conference
The Magic Bracelet Q&A
International Metabolic Conference
Tobin Chettiath
Ultragenyx Commitment to the LC-FAOD Patient Community
International Metabolic Conference
Ultragenyx Q&A – A Conversation with Ultragenyx’s CMO and Global Metabolic Dietitian
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Upcoming
Events

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Sep 17
September 17 @ 8:00 am - September 24 @ 5:00 pm

Awareness Week

Sep 22
12:00 pm - 1:00 pm Event Series

Weekly Support Call

Sep 24
5:00 pm - 9:00 pm

Energy Walk – Boston

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Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

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Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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