My son Colt is dearly missed by his family. We were lucky to have him with us for 16 months. At 10 months is when the symptoms started. We were in the hospital for 41 days, which changed our lives forever. Had no idea my son would go through so much. We, of course, never left him in there alone but so very thankful to all the nurse’s doctors and countless other people. I miss my son every minute and losing him was so unfair because of this horrible disease. I pray the world will be aware of this to hopefully one day soon there will be a cure or even better treatments. So very sorry for anyone who has to endure such horrific situations caused by this disease. I love you, Colt, and know you’re daddy’s angel and will be happy to reunite with you again in heaven.