Join MitoAction, Laura Pisani-Betancourt and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, July 9th, 2021 at 12:00pm EST for our monthly expert series presentation!
On this webinar, Ultragenyx will discuss the development of its LC-FAOD Disease Monitoring Program (DMP), which includes both an in-clinic study and an online study that are expected to launch in 2021. Participants will learn about the studies, including how insights from the LC-FAOD community have informed the DMP’s research goals, how the DMP aims to change the future of LC-FAOD research and disease management, and Ultragenyx’s plans to launch the DMP.
*This webinar is intended for U.S. members of the MitoAction community*
The accompanying slides can be found by clicking here.
Enjoy big hats, bow ties, incredible silent and live auction items, and signature mint juleps while helping raise money to improve the lives of patients and families affected by mitochondrial disease.