Patient & Family Support
Connect with other mito patients and family members, and create lasting personal relationships and a robust support system.
MitoAction offers a wide-range of support opportunities to people living with mitochondrialRelated to the mitochondria. disease and their loved ones. Our goal is to create lasting personal connections to support anyone within the mito community. As living with a rare disease can be isolating, it’s important to surround yourself with a support system, and we can help.
If you’re just starting your journey and need immediate support, call 1-888-MITO-411 (648-6411) to connect with a volunteer who can relate to the journey of diagnosis and the challenges of living with mitochondrial disease.
Mito411
Mito411 offers patients a direct link to someone who understands by means of a one-on-one phone call.
Support Calls
Support Calls include a wide array of online support for different groups. Calls range from general support, to specific groups including FAODs, young adults, and men’s calls. There is something for everyone.
MitoAction Memories
MitoAction Memories is aimed at providing the delicate, yet necessary, support to families navigating their grief after losing a loved one.
MitoPlaydates
MitoPlaydates helps families with mito children to facilitate chances to interact with other local families on a similar journey.
MitoSocials
MitoSocials, hosted both in-person and virtually, offer folks living in close proximity the chance to meet, share, and be understood.
Positive Peach Packages
Positive Peach Packages are a way to offer a positive touchpoint from someone in the mito community. By nominating someone for a Positive Peach Package, you are reminding them that they are never alone on their journey.
