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Expert Series: Understanding the Current Landscape of Insurance Coverage for Rare Diseases

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As our community celebrates the approval of two new therapies, understanding how to access coverage successfully has never been more important. In partnership with the Little Hercules Foundation and its founder, Kelly Maynard, this special MitoAction Expert Series will break down today’s evolving insurance landscape, including Medicaid, Medicare, ACA protections, and pharmacy vs. medical coverage, while also taking you behind the scenes to understand how claims are processed, how coding and prior authorizations impact access, and how to read and respond to an Explanation of Benefits. This practical, empowering session will equip patients and caregivers with the knowledge needed to anticipate barriers, avoid common missteps, and confidently advocate for timely access to treatment

Register

expert series, insurance

About the Speaker

Kelly Maynard

Kelly Maynard

As our community celebrates the approval of two new therapies, understanding how to access coverage successfully has never been more important. In partnership with the Little Hercules Foundation and its founder, Kelly Maynard, this special MitoAction Expert Series will break down today’s evolving insurance landscape, including Medicaid, Medicare, ACA protections, and pharmacy vs. medical coverage, while also taking you behind the scenes to understand how claims are processed, how coding and prior authorizations impact access, and how to read and respond to an Explanation of Benefits. This practical, empowering session will equip patients and caregivers with the knowledge needed to anticipate barriers, avoid common missteps, and confidently advocate for timely access to treatment.

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Mar 12
11:00 am

POLG Support Call

Mar 12
8:15 pm

FAOD Support Call

Mar 13
12:00 pm

Mito Weekly Support Call

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Last Presentation

Expert Series: Neuropathy and Disorders of Mitochondrial Dysfunction
Presented February 20, 2026

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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