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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Expert Series: Mitochondrial Disease and PMM

Sep 11, 2024

What is Primary Mitochondrial Myopathy (PMM)? Join MitoAction and Amel Karaa as she discusses the terminology used to …

[Read more...]

compassionate use, expanded access, experimental therapies, expert series

Expert Series: Expanded Access and Compassionate Use of Experimental Therapies

Aug 12, 2024

 "Expanded Access" and "Compassionate Use" are terms that are utilized in our rare disease community, but what do …

[Read more...]

compassionate use, expanded access, experimental therapies, expert series

Energy in Action Podcast Episode 113: Dr. Vockley’s Journey in Mitochondrial Disease Care

Jul 3, 2024

Dr. Jerry Vockley works everyday in the development and advancement of mitochondrial disease patient care. He is a …

[Read more...]

energy in action, mitochondrial disease care, podcast, research

Energy in Action Podcast Episode 112: Cegat Genetic Opportunities

Jun 19, 2024

Eric Miller and Anil Bhardwaj join me from CeGaT, a biotechnology company and world-leader in genetic analyses for a …

[Read more...]

DNA, DNA Analyzing, energy in action, Genetics, podcast, testing

Expert Series: Enhancing the Lives of Mitochondrial Disease Patients Through Compounded Treatment Options

Jun 6, 2024

Numerous Mitochondrial disease patients consume something known as the "Mito Cocktail". What is this exactly? How do you …

[Read more...]

compounded treatment, expert series, treatment options

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Upcoming Events

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May 8
8:15 pm

FAOD Monthly Evening Support Call

May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

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Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
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