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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Expert Series: Ceramides: The Unmasked Drivers of VLCADD-Induced Heart Failure

Emily Grandahl Sep 14, 2023

Despite advances in newborn screening and treatment of fatty acid oxidation disorders, patients with very-long-chain …

[Read more...]

ceramides, expert series, faod, heart failure, VLCADD

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Emily Grandahl Sep 11, 2023

Having a better understanding of what things are associated with LCHADD retinopathy can provide insight towards …

[Read more...]

expert series, LCHADD, LCHADD Retinopathy, treatment

Expert Series: Immune Cell Function in Mitochondrial Disease

Emily Grandahl Aug 30, 2023

Immune dysfunction is increasingly appreciated in mitochondrial disorders. Join Melissa Walker to review the small …

[Read more...]

expert series, immune cell function, immune dysfunction, primary mitochondrial

Weekly Support Call

Kira Mann Aug 2, 2023

Spend an hour with MitoAction on Fridays for our weekly support group calls!Our support call creates a safe and …

[Read more...]

expert series, mito support

Expert Series: Rhabdo Roundtable for Families & Caregivers of FAOD Patients

Kira Mann Jul 31, 2023

This month our FAOD Support Call will look a little different! Rhabdomyolysis can feel like being lost without a road …

[Read more...]

expert series, faod, fatty acid oxidation disorders, mitochondria, rhabdomyoysis

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Last Presentation

Expert Series: Serial Casting and Toe Walking
Presented April 25, 2025

P.O. Box 310
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(888) 648-6228
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