Despite advances in newborn screening and treatment of fatty acid oxidation disorders, patients with very-long-chain acyl-CoA dehydrogenase deficiency (VLCADD) continue to suffer from heart failure. Marie Norris will discuss her […]
Expert Series: Rhabdo Roundtable for Families & Caregivers of FAOD Patients
This month our FAOD Support Call will look a little different! Rhabdomyolysis can feel like being lost without a road map leading you home. Join us at 8:15pm for a […]
Expert Series: Rhabdo Roundtable for Teens & Adult FAOD Patients
Rhabdomyolysis can feel like being lost without a road map leading you home. Join us for an informal session to discuss personal experiences with rhabdo, from symptoms to recovery. Physical […]
