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Mito Patient and Family Support

Our support programs

Weekly support calls

MitoAction hosts weekly teleconferences and support groups. 

First Friday of the month: Guest speaker (noon EST)
Second Friday: Newly diagnosed patients and parents (noon EST)
Third Friday: Support group for parents (noon EST)
Fourth Friday: Support group for adult patients and spouses (noon EST)
Quarterly (Tuesdays): Autism-Mito Task Force (12:30 EST)

To participate, call the toll-free teleconference number 1-866-414-2828, participant code 017921#

Mito Patient & Family Socials

We have heard many people express their desire to meet other Mito families in their communities. We want to help you make those connections. We are seeking volunteers to help organize a Mito Patient and Family Social in your area and  MitoAction will help! These gatherings are low-key, relaxed events that allow Mito families to meet each other, share stories, give and get support, and realize they're not alone on this difficult journey.For more information: www.mitoaction.org/mito-patient-and-family-socials. If you'd like to help organize a Social, or want more information, please contact MitoAction membership and support coordinator Ginger DeShaney at support@mitoaction.org.

Mito 411

Call us at 1-888-MITO-411 (648-6411) to connect to a volunteer who can relate to the journey of diagnosis and the challenges of living with mitochondrial disease.  Volunteers are adults with Mito, parents of children with mitochondrial disorders, and caregivers. For more information: http://www.mitoaction.org/mito-411

Facebook page

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Events Page

Check out  www.mitoaction.org/events often to find out what's going on in your state.