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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
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    • About FAODs
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Patient & Family Support

Support Calls

Our support calls create a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in to share their experiences, ask a question, and offer and receive individualized support.

Through our many support call avenues, MitoAction is committed to providing a safe and supportive environment for you to share your experiences and discuss your personal victories and challenges. Whether you’re a patient, parent, caregiver, friend, or love one these support enviornments are for you!

Check out our various groups below to see how you can join in!

Weekly Support Calls

Join MitoAction and other patients, caregivers, and loved ones, who are on their diagnostic journey or are already diagnosed with Mito, for our confidential weekly support calls.

Learn More

FAOD Support Calls

Join other families and patients affected by fatty acid oxidation disordersA group of genetic conditions that affect how the body breaks down fats to make energy.. Share stories, experiences, and give and receive support! Everyone is welcome!

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Men’s Support Calls

Men impacted by mitochondrialRelated to the mitochondria. disease face a unique set of circumstances. Join us for a monthly support call just for men in the mitochondrial disease community!

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CPEO & Me Support Call

CPEO & Me Support Calls are a special place reserved for individuals impacted by CPEO to share about their experiences and connect with others on a similar journey.

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Our Space: A Space for Young Adults

Join young adults with Mito and FAODs to connect, network, and hangout! These meetings will occur the third Tuesday of the month at 8:30pm (EST)!

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Upcoming Events

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May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 11
All day

Celebrate Mother’s Day

View Calendar

Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

View Calendar

Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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