• Facebook
  • Instagram
  • Twitter

Get Support – Call 1-888-MITO-411

  • Shop
  • Events
  • Donate
  • Search
MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms of Mito
      • Treatment for Mito
      • Diagnosing Mito
      • Mito FAQs
      • Mito in the News
    • Diagnosis & Care
      • Mitochondrial Disease Diagnosis
      • Find a Mito Doctor
      • Mito Disease Treatment
      • Mito Cocktail
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Mito Life Hacks
      • Mito Resources
      • Living with Mitochondrial Disease
      • Care Coordination & Management
      • Managing Your Energy
      • Traveling with Mito
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAODs
      • Symptoms of FAODs
      • Diagnosing FAODs
      • Treatment for FAODs
    • FAOD Programs & Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Resources
      • FAOD Life Hacks
  • Programs & Support
    • Patient & Family Support
      • Mito411
      • Support Calls
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • Become a MitoChampion
      • Positive Peach Packages
      • Liney’s Lovies
    • MitoAction Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund & Scholarship
      • Marcel’s Way Family Fund
      • MitoArtisan’s Playtime
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Planning & Preparation
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate to MitoAction
      • Honor and Memorial Giving
      • Matching Gifts
      • Another Helping
      • Giving Tuesday
      • Shop for MitoAction
    • Events
      • Events Calendar
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
      • Team MitoAction!
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • Become a MitoChampion
      • Share Your Ideas
    • Raise Your Voice
      • Externally Led Patient-Focused Drug Development Meeting on MELAS
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Open Mito Mic & Art Show
      • MitoAction Memories
  • About MitoAction
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
    • Newsletter Signup
  • Show Search

Tisento Therapeutics Announces Publication of MELAS Interview Study, Incorporating Patients’ Perspectives to Elucidate Symptoms and Impacts of Rare Mitochondrial Disease

mitoaction Nov 3, 2025

Originally Published by Tisento Therapeutics on November 3, 2025.

Findings Demonstrate the Importance of Addressing …

[Read more...]

Mitochondrial Disease News

MitoAction Advocates for Barth Syndrome Community in FDA Listening Session

mitoaction Apr 1, 2024

FOR IMMEDIATE RELEASE

[Boston, MA, April 1, 2024] - MitoAction, a leading nonprofit organization dedicated to …

[Read more...]

Mitochondrial Disease News barth syndrome, fda

Mitochondrial Disease Researchers Win Major Award

mitoaction Feb 25, 2024

The Lurie Prize in Biomedical Sciences recognizes outstanding achievement by a promising young scientist (52 or younger) …

[Read more...]

Mitochondrial Disease News

Mito Research on the Fly: Dissecting the complexity of Complex I diseases using an insect model species

mitoaction Feb 24, 2024

https://cob.silverchair-cdn.com/cob/content_public/journal/bio/jam/10.1242_bio.060278/3/bio060278.pdf?Expires=1711827491& …

[Read more...]

Mitochondrial Disease News

Non-monogenic inheritance of mitochondrial disease: a case of atypical Leigh syndrome caused by three apparently pathogenic variants, each in the heterozygous state

mitoaction Feb 6, 2024

https://www.frontiersin.org/articles/10.3389/fcell.2021.767407/full

The application of DNA sequencing has led to …

[Read more...]

Mitochondrial Disease News

  • 1
  • 2
  • 3
  • …
  • 24
  • Next Page »

Upcoming Events

View All
Nov 26
8:00 pm

Wondering Wednesdays with Genetic Counselor

Dec 2
All day

Giving Tuesday

Dec 4
6:00 pm

CPEO & Me

View Calendar

Expert Series

View All
Notice
There are no upcoming events.

Last Presentation

Expert Series: Primary Mitochondrial Disease Evaluations: The evolving role of muscle biopsy
Presented November 14, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

  • Support
  • Resources
  • Donate to MitoAction
  • Events
  • Subscribe
©2025 MitoAction. All Rights Reserved.

Privacy Policy. Terms of Use.

DECEMBER 2, 2025

Hope in Action with MitoAction!

Spread joy, share hope, and shine bright this holiday season—give the gift of hope to a mito kid in need by supporting MitoSantas. Together, let’s create moments that last a lifetime and add joy to someone’s journey with mito.

Give the Gift of HOPE

Make a Donation