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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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MitoAction in the News

Mighty Therapeutics, Formerly Stealth BioTherapeutics, Announces New Name Honoring the Mitochondrial Disease Community

Michael Green Jun 16, 2026

June 16, 2026

NEEDHAM, Mass., June 16, 2026 — Stealth BioTherapeutics Holdings Inc., a commercial-stage biotechnology …

[Read more...]

MitoAction in the News, Mitochondrial Disease News, Press Releases barth syndrome, FORZINITY, Mighty Therapeutics, Stealth BioTherapeutics

Khondrion Announces First Patient Dosed in Pivotal Phase 3 KHENERFIN Study of Sonlicromanol in Mitochondrial DNA 3243A>G Primary Mitochondrial Disease

Emily Grandahl Apr 16, 2026

April 16, 2026

NOTES TO EDITORSAbout KhondrionKhondrion is a late-stage clinical biopharmaceutical company focused …

[Read more...]

MitoAction in the News, Mitochondrial Disease News, Press Releases

Navigating the FDA’s Complete Response Letter and identifying a path forwardfor SL1009 (DCA).

Emily Grandahl Apr 9, 2026

March 31, 2026

Dear Members of the PDCD Community,

We are deeply grateful for your support and advocacy throughout …

[Read more...]

MitoAction in the News, Mitochondrial Disease News, Press Releases

FDA Approval of KYGEVVI Marks a Defining Moment for Mitochondrial Disease Community and Families Affected by TK2d

Emily Grandahl Nov 5, 2025

FOR IMMEDIATE RELEASE

Contact:Emily GrandahlMarketing Coordinator, MitoActionemily@mitoaction.org(888) …

[Read more...]

MitoAction in the News, Mitochondrial Disease News, Press Releases

Tisento Therapeutics Announces Publication of MELAS Interview Study, Incorporating Patients’ Perspectives to Elucidate Symptoms and Impacts of Rare Mitochondrial Disease

mitoaction Nov 3, 2025

Originally Published by Tisento Therapeutics on November 3, 2025.

Findings Demonstrate the Importance of Addressing …

[Read more...]

Mitochondrial Disease News

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Upcoming Events

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Jun 23
6:00 pm

Men’s Support Call

Jun 24
8:00 pm

Wondering Wednesdays with Genetic Counselor

Jun 26
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Expert Series

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Last Presentation

Expert Series: Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails
Presented May 12, 2026

P.O. Box 310
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(888) 648-6228
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