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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Stand Up For Family Rights

Sarah Harty Aug 11, 2022

MitoAction's Response to the Pelletier Case

ad·vo·ca·cy: The act of pleading or arguing in favor of something, such …

[Read more...]

Uncategorized

Sandra’s Story

Sarah Harty Oct 22, 2019

Sandra Russell is a mother of two boys, ages 22 and 18. It's no wonder she's tired after raising two boys, with her …

[Read more...]

Patient Spotlight

Marquis Family Fighting for Little Miss Roo

Sarah Harty Oct 22, 2019

DERRY, NH –Amy and Jason Marquis’ daughter was given a death sentence. Riley, also known as Little Miss Roo, has Leigh’s …

[Read more...]

Patient Spotlight

Cerrutis Craft a Way to Raise Mito Awareness

Sarah Harty Oct 22, 2019

Every year, Rita Cerruti makes more than 300 mitochondrial disease awareness ribbons to hand out at the MitoAction …

[Read more...]

Patient Spotlight

On the Wings of Hope

Sarah Harty Oct 22, 2019

Lori Jubinville of Chicopee, MA, was diagnosed with mitochondrial disease in June 2005. In September 2005, Lori and …

[Read more...]

Patient Spotlight

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Upcoming Events

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Nov 26
8:00 pm

Wondering Wednesdays with Genetic Counselor

Dec 2
All day

Giving Tuesday

Dec 4
6:00 pm

CPEO & Me

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Expert Series

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Notice
There are no upcoming events.

Last Presentation

Expert Series: Primary Mitochondrial Disease Evaluations: The evolving role of muscle biopsy
Presented November 14, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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DECEMBER 2, 2025

Hope in Action with MitoAction!

Spread joy, share hope, and shine bright this holiday season—give the gift of hope to a mito kid in need by supporting MitoSantas. Together, let’s create moments that last a lifetime and add joy to someone’s journey with mito.

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