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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
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Patient Spotlight

Sandra’s Story

Sarah Harty Oct 22, 2019

Sandra Russell is a mother of two boys, ages 22 and 18. It’s no wonder she’s tired after raising two boys, with her husband Gordon, and co-owning and running a […]

Patient Spotlight

Marquis Family Fighting for Little Miss Roo

Sarah Harty Oct 22, 2019

DERRY, NH –Amy and Jason Marquis’ daughter was given a death sentence. Riley, also known as Little Miss Roo, has Leigh’s Disease, one of the most devastating forms of mitochondrial […]

Patient Spotlight

Cerrutis Craft a Way to Raise Mito Awareness

Sarah Harty Oct 22, 2019

Every year, Rita Cerruti makes more than 300 mitochondrial disease awareness ribbons to hand out at the MitoAction Energy Walk & 5K. And every year, they are gone in minutes! […]

Patient Spotlight

On the Wings of Hope

Sarah Harty Oct 22, 2019

Lori Jubinville of Chicopee, MA, was diagnosed with mitochondrial disease in June 2005. In September 2005, Lori and husband Mark attended the first MitoAction Energy Walk. This year, along with […]

Patient Spotlight

Team Lissy Loo Creates Colorful Fundraiser

Sarah Harty Oct 22, 2019

One little girl is using the colors of the rainbow to raise awareness about mitochondrial disease, the disorder that affects her. Alyssa Curley, the heart and soul of Team Lissy […]

Patient Spotlight

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Upcoming
Events

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Sep 24
5:00 pm - 9:00 pm

Energy Walk – Boston

Sep 27
8:00 pm - 9:00 pm Event Series

Wondering Wednesdays: Ask the Genetic Counselor

Sep 28
1:00 pm - 2:30 pm

FAOD Monthly Afternoon Support Call

View Calendar

Expert
Series

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Upcoming Presentations

Nov 1
7:00 pm - 8:00 pm

Expert Series: LCHADD Retinopathy Update: Moving Toward a Treatment

Nov 3
12:00 pm - 1:00 pm

Expert Series: Immune Cell Function in Mitochondrial Disease

View Calendar

Last Presentation

Expert Series: At the crossroad of mitochondrial disease and mitochondrial dysfunction
Presented July 25, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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