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Patient Spotlight


Castles are Royalty of Raising Awareness

KINGSPORT, TN — The Castle family’s goals are simple: raise awareness about mitochondrial disease, move forward, and live. They count their blessings and thank God for all that they...


Shop to Support MitoAction

Kirsten, a MitoAction member, reported that Barbara Morse Silva interviewed her kids Olivia and Harrison on WJAR Channel 10 Providence, New Bedford RI (NBC) about their Make A Wish...


Brianna’s Story

Brianna Couture You may hear Brianna singing in local musicals or see her teach Tai Kwon Do to children. You may notice her lovely voice and her smile. You...


Joey’s Story

Joey’s smile lights up the world and the hearts of those who know him. He is a beautiful three year old boy with thick dark hair, large brown eyes,...


Janis’ Story

  Six year old Janis enjoys life in Maine with her adoptive parents Tom and Karen Kohlmeyer.. She was born with the inability to tolerate food and ended up...


Sandra’s Story

  Sandra Russell is a mother of two boys, ages 22 and 18. It’s no wonder she’s tired after raising two boys, with her husband Gordon, and co-owning and...


Mito Mom Wears Many Different Hats!!

Well today is no different from any other day when you have two children with Mitochondrial Disease ages 14 and 18. It is chaotic, tiring, inspirational, as well as...


Rocco, You’re Not Alone

Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support. Original Post August 8, 2008 Tampa Rays MLB player Rocco Baldelli Living...


Will You Still Love Me if I’m Nothing? –Syd’s story

I have lost so much connection with the world and other people. The deepest loss is with my family. Sometimes my perception of their indifference to me becomes intense....


Channeling ‘Dr House’

Channeling ‘Dr. House’ Student shares Mito research in educational video The searing leg pain started in her junior year of high school. She was playing competitive club soccer, but...