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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Kristin Voorhees

Kristin Voorhees
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Kristin Voorhees is an Associate Director of Patient Advocacy at Ultragenyx Pharmaceutical where she has the honor of representing the experiences of rare disease communities and helping to integrate the perspectives of patient and families into company and program decision-making. Kristin has more than 10 years of experience in spearheading patient engagement and patient-focused programs in close collaboration with patients, caregivers, clinicians, researchers, and the biopharmaceutical and diagnostics industries. Kristin holds a BA in Communication Studies from James Madison University and a Master of Health Communication from Emerson College and Tufts School of Medicine.

Past Expert Series Presentations

Monthly Mito
Expert Series
07/09/2021
Kristin Voorhees Laura Pisani-Betancourt
Introducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research Globally
Monthly Mito
Expert Series
05/21/2021
Eliza Kruger Kristin Voorhees
Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

Upcoming
Events

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Jun 4
7:00 pm - 8:00 pm

Traveling with an FAOD

Jun 8
8:15 am - 9:45 am Event Series

FAOD Monthly Support Call

Jun 9
12:00 pm - 1:00 pm Event Series

Weekly Support Call

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Expert
Series

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Upcoming Presentations

Jun 16
12:00 pm - 1:00 pm

Aging with Mito

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Last Presentation

Expert Series: Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d)Expert Series:
Presented May 3, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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