CPEO & Me
Join us for “CPEO and Me” every 1st Thursday of the the month at 6pm (EST)! This is a special place carved out for individuals impacted by CPEO to share […]
10 events found.
Events
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Expert Series: Simplifying the Mitochondrial Medication Experience Through Compounded Mito Cocktails
As the incidence of mitochondrial disease continues to rise, patients having a better understanding surrounding their therapies remains critical. Compounding pharmacies play a key role in simplifying medication regimens while providing affordable […]
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Mito Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
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POLG Support Call
We are thrilled to be collaborating with The POLG Foundation for this wonderful support call series!
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FAOD Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call […]
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Mito Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
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MitoArtisan’s Playtime – Course 9
Writing as Healing workshops offer a safe, supportive space to express our thoughts and feelings through words, enabling us to process trauma, accept difficult news, and rebuild resilience. We are […]
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MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […]
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Expert Series: Understanding the potential of a “CPK Meter”
IVDS is a biotech company developing a CPK meter called, CPK Now. This small, handheld device will allow patients to check their creatine kinase (CK) level quickly from a fingerstick sample, so […]
