MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
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Expert Series: Ultra-Rare Mitochondrial Diseases: Development Challenges and Opportunities
Join CEO of Stealth Biotherapeutics Reenie McCarthy, and special guest Shelley Bowen, Director of Family Services and Advocacy for the Barth Syndrome Foundation, as they discuss the health equity challenges […]
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own […]
FAOD Monthly Evening Support Call
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call […]
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
Energy Walk – Rochester
Join us for the 5th annual Rochester, NY Energy Walk! Join our hosts, Stacy, her cousins Kate and Erin, and the Bellaire Family as they work together to help spread […]
Massachusetts Virtual MitoSocial
If you live in Massachusetts, join us for a virtual MitoSocial on Tuesday, October 17th to connect with others in your local community who share your story with mitochondrial disease. […]
MitoChampions Monthly Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion […]
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
