MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
MitoArtisan’s Playtime – Course 6
“The idea for the MitoHeart Project began one evening on a MitoChampion zoom call. During the call, I was knitting and listening to others as they discussed a recent tragedy […]
Seeing Beyond the Diagnosis: Life with Mito
Join MitoAction September 15th at 7pm EST for a unique experience that will bring you inside understanding into the patient diagnostic and treatment journey. Mitochondrial disease patients value their GCs, […]
Our Space: A space for young adults with Mito and FAODs to connect and network
Join us for Our Space: a space for young adults with Mito and FAODs to connect, network, and hangout! We recognize that being a young adult comes with it's own set of challenges and MitoAction is committed to ensuring that each member of our young adult community feels supported and part of a larger community.Don't […]
Light a Light
Each year during the Wednesday of Mitochondrial Disease Awareness Week, we celebrate and join together to raise awareness for mitochondrial disease across the globe, we remember those who have lost the battle […]
MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. To […]
Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […]
Light Up For Mito
On Saturday, September 20th, landmarks, buildings, homes, and monuments around the world lit up green to shine a light on mitochondrial diseases. This powerful global display raises visibility, sparks conversations, […]
