Events
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MitoChampions Meeting
Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion […]
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CPEO & Me
Join us for “CPEO and Me” every 1st Thursday of the the month at 6pm (EST)! This is a special place carved out for individuals impacted by CPEO to share […]
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Mito Weekly Support Call
Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, […]
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Presentation: “Breaking Down” FAODs: MCADD, LCHADD, CPT2, VLCADD (and more!)
The FAOD community is comprised of numerous types of FAODs. How do they compare, what enzymes are affected, and why does this lead to different treatments? Did you ever wish […]
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You Are Not Alone: Undiagnosed Community Roundtable
Meet up with members of the Mito/FAOD community who are genetically undiagnosed. Join in to share stories, resources, and support each other on our undiagnosed journeys.
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Roundtable Discussion: Maintaining Mental Health Through Different Waves of Your FAOD
If you are an adult patient or a caregiver of an FAOD you know that there are unique challenges when managing a chronic illness. This is a safe space to […]
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Presentation: Navigating the Medical System as an FAOD Adult: Exploring the Unknown
Adulting with an FAOD presents unique challenges and questions. This presentation will discuss the multidisciplinary care team, how to improve coordination of care and how clinicians safely apply “trial and […]
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Roundtable Discussion: All Things MCADD
From infancy to the teenage years, this roundtable will be a space for MCADD families to share their experiences and learn from one another. MCADD is the most common FAOD […]
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Roundtable Discussion: “International Experience”
Families with FAODs exist all over the world. In this fun space we will explore: How do you manage your/your child's medical routine/diet in your own country? What are creative […]
