MitoAction
Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease
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Charlie Mitter was a beloved member of the MitoAction team, but also the entire mitochondrial disease community. In memory of his daughter Caroline who passed away from mitochondrial disease, Charlie took his role of “bridging the gap” between the practical and scientific community seriously. He was a consistent presence in our Facebook community and to […] |
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1 event,MitoAction will Be closed from Wednesday, July 3rd to Sunday, July 7th for the Fourth of July Holiday Weekend. We will reopen with normal business hours on Monday, July 8th. Wishing everyone a fun and safe holiday weekend! |
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Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs. |
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Numerous Mitochondrial disease patients consume something known as the "Mito Cocktail". What is this exactly? How do you decide where to get components of your "Mito Cocktail" and what are the pros and cons of using a compounding pharmacy? How do compounding pharmacies work with clinicians to make sure that patients are receiving the treatments […]
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Creating and connecting with other artists creates healing. Whether you are young or old, a seasoned artist or just curious, we encourage you to join us on July 14th as we explore art together. Christine Knox, a seasoned illustrator, quilter, artist and MitoChampion, will teach us how to use various drawing materials and share techniques […] |
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Are you interested in becoming more involved with MitoAction and advocacy efforts for the community? Become a MitoChampion and engage in ways that are most meaningful to you. Our MitoChampion meetings are a collective space to bring volunteers together to work on various projects related to advocacy, education, peer-to-peer support, fundraising and much more. Interested […] |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Join us for Wondering Wednesdays: Ask the Genetic Counselor every 4th Wednesday of the month. Genetic Counselor and Mito Advocate Devin Shuman will host these informal non-recorded sessions to help make genetics feel more accessible to everyone. |
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Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders. This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs. |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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Spend an hour with MitoAction on Fridays for our weekly support group calls! Our support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive […] |
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