Last Updated: January 16, 2021
MitoAction is working diligently to keep our community safe and connected with vital updates related to the COVID-19 global outbreak. We will continue to share recommendations from the CDC, NIH and other reputable sources to help you and your family remain safe and protected.
Patients with mitochondrial disease and families have many questions about the new COVID-19 vaccine(s), including whether to take it? Whether they should be prioritized? And its potential risks and benefits.
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Revisions were made on October 6, 2020 to reflect recent data supporting increased risk of severe illness from the virus that causes COVID-19 among adults with COVID-19 who have obesity, who have overweight, or who smoke or have a history of smoking. These revisions also make the document more explicit about data and implications for adults and for children. The listed underlying medical conditions in children were also revised to indicate that these conditions might increase risk to better reflect the quality of available data currently. This reflects the fact that there are less data available for children and does not imply that children are not at risk.
We are learning more about COVID-19 each day and will continue to provide updates on our website as new information relating to the safety of our community becomes available. The most IMPORTANT thing we all can do is to abide by community-wide social distancing. This seems to be the most effective at reducing the spread of the virus that causes COVID-19.
We at MitoAction are getting many questions about ongoing care and how to maintain some sense of normalcy. As we are not giving medical advice, if you are experiencing any symptoms or have medical concerns, please CALL YOUR PRIMARY DOCTOR FIRST, BEFORE GOING TO THE OFFICE. People with COVID-19 have had a wide range of symptoms reported – ranging from mild symptoms to severe illness. These symptoms may appear 2-14 days after exposure to the virus: fever, cough, shortness of breath or difficulty breathing, chills, repeated shaking with chills, muscle pain, headache, sore throat, new loss of taste or smell. Be prepared to have telemedicine appointments and flexibility in your schedule.
As always, these are recommendations only. Please connect with your medical team if you have vital concerns about your health or you are experiencing unusual symptoms.
Joining us on our weekly support calls is a phenomenal way to connect with others and be reassured you aren’t alone during this. We know that being indoors for extended periods of time can be isolating and lonely, and we want to ensure that MitoAction continues to provide ways to keep our community connected and engaged with one another. For more details about our weekly support calls visit www.mitoaction.org/weeklysupport or call our Mito411 Support Line at 888-MITO-411.