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Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

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Fatty Acid Oxidation Disorders
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IMC Post-Event Survey In-Person Attendee TEST

2023 IMC Post-Conference Survey (In-Person Attendees)

Please indicate which sessions you found most valuable

Community Updates & INFORM: Understanding the Big Picture

Ultragenyx Update

FAODs through the Ages: Focusing on Infancy through Elementary School

Ketones: For all FAODs

FAODs through the Ages: Focusing on “the teen years”

More than a Massage: Self Care for the Long Haul

A Visit to the Hospital by an FAOD Patient: An Annotated Analysis

Cardiac Implications and LC-FAODs

Clinician Panels

MyMito App

Considerations for Rhabdomyolysis and Return to Activity for FAODs

FAOD: Adjunctive Management Strategies

Political Advocacy 101

Infection

FAOD through the Ages: Learning from our Adult FAODs

Please indicate which roundtable discussions you found most valuable

Disease-Specific

Being Diagnosed Later in Life

Barriers to Following a Medical Care Plan

Dads Sharing with Dads

GA II/Undiagnosed: Unique Battles

Preparing for College

Putting Self Care to Work

How Physical Therapy Can Help FAODs

How to Build a Career that Considers Your Interests and Your Health

Teen Roundtable Discussions

Please share any additional feedback regarding conference sessions (including topics, speakers, presentation format, etc.)

Our bi-monthly FAOD Support calls currently take place at 8:15pm EST and 1:15pm EST. If you are interested in attending these calls, please select the time(s) that would work best for you.

Thursdays at 8:15pm EST

Thursdays at 1:15pm EST

Saturdays at 8:00pm EST

Other (Fill-in Below)

How well was the hotel able to accommodate your dietary needs?

Excellent

Good

Fair

Poor

Please share any additional feedback related to your nutritional experience

If your child participated in the children’s and/or teen spaces available, please include information you’d like to share regarding your child’s experience.

Please rate your overall experience at the International Metabolic Conference

Excellent

Good

Fair

Poor

Would you like to attend the IMC again in the future?

Yes

No

If you are interested in receiving information on becoming a volunteer for MitoAction, please share your email here.