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MitoAction

MitoAction

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Samuel Cutliff

Sep 26, 2019

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Leigh’s Disease

The Lord blessed us with a special gift … Samuel. He always had a smile on his face and captured all who met him with his beautiful blue eyes and curly blonde hair! He also had special needs. He passed away on September 10, 2012, from Leigh’s Syndrome, a mitochondrial disease.  Samuel taught us and touched our lives more than any other person. He taught us to treasure each moment, to be content in all circumstances and to put our faith in God through it all. His smile was contagious, his laugh was like music to our ears, and his heart was pure. He loved his family and friends. He loved music, dancing, snuggles, and kisses. He always wanted to be holding our hand and will forever hold our hearts. Our hearts will never be whole again with him gone, but we rejoice that he is now healed and whole. He is praising our Lord and running on the streets of gold. He is perfect. We praise the Lord for giving Samuel to us for almost 8 years and we will treasure each and every memory.  Until we see you again, sweet Samuel … Daddy, Mommy, Gracie, Annaleigh, and Micah

Upcoming Events

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May 8
8:15 pm

FAOD Monthly Evening Support Call

May 9
12:00 pm

Weekly Support Call

May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

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Expert Series

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May 9
12:00 pm - 1:00 pm

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles

May 15
7:00 pm - 8:00 pm

Expert Series: Serial Casting and Toe Walking

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Last Presentation

Expert Series: How to Keep Airways Clear and Breathing Great – Bulbar Function and Respiratory Muscles
Presented April 11, 2025

P.O. Box 310
Novi, MI 48376
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