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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
    • About Mito
      • New Patient Kit
      • Types of Mitochondrial Diseases
      • Symptoms of Mito
      • Treatment for Mito
      • Diagnosing Mito
      • Mito FAQs
    • Diagnosis & Care
      • Mitochondrial Disease Diagnosis
      • Find a Mito Doctor
      • Mito Disease Treatment
      • Mito Cocktail
      • Clinical Trials & Studies
    • Day to Day with Mito
      • Mito Life Hacks
      • Mito Resources
      • Living with Mitochondrial Disease
      • Care Coordination & Management
      • Managing Your Energy
      • Traveling with Mito
    • For Medical Professionals
      • Mitochondrial Care Network
      • Monthly Expert Series
  • Fatty Acid Oxidation Disorders
    • About FAODs
      • Types of FAODs
      • Symptoms of FAODs
      • Diagnosing FAODs
      • Treatment for FAODs
    • FAOD Programs & Support
      • New Patient Kit
      • FAOD Support Calls
      • FAOD Experts Series
      • International Metabolic Conference
    • Day to Day with FAOD
      • FAOD Resources
      • FAOD Life Hacks
  • Programs & Support
    • Patient & Family Support
      • Mito411
      • Support Calls
      • MitoAction Memories
      • MitoPlaydates
      • MitoSocials
      • Become a MitoChampion
      • Positive Peach Packages
      • Liney’s Lovies
    • MitoAction Programs
      • Dalia’s Wish
      • Matthew Harty Camper Fund & Scholarship
      • Marcel’s Way Family Fund
      • MitoArtisan’s Playtime
      • MitoSantas
      • MyMito App
    • Education
      • Monthly Expert Series
      • Wondering Wednesdays
      • Energy In Action Podcast
      • Energy 4 Education
      • Patient Education Forums
      • International Metabolic Conference
    • Planning & Preparation
      • Health Insurance
      • Disability Benefits
      • Mobility Devices
      • Vehicle Modification
      • Estate Planning
      • Medical Child Abuse
  • Join the Cause
    • Giving
      • Donate to MitoAction
      • Honor and Memorial Giving
      • Matching Gifts
      • Another Helping
      • Giving Tuesday
      • Shop for MitoAction
    • Events
      • Events Calendar
      • International Metabolic Conference
      • MitoAction Energy Walks
      • Sandra K. Russell Derby Day Benefit for Mito
      • Matthew Harty Camper Fund Events
    • Volunteer
      • Host a MitoSocial
      • Host a MitoPlaydate
      • Create a Fundraiser
      • Become a MitoChampion
      • Share Your Ideas
    • Raise Your Voice
      • Take Legislative Action
      • Mitochondrial Disease Awareness Week
      • Open Mito Mic & Art Show
      • MitoAction Memories
  • About MitoAction
    • Contact Us
    • Connect on Social
    • Our Team
    • Meet Our Partners
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I Think I Have Mito. Now What?

Start your journey here, with links to our education resources about mitochondrial disease, diagnosis information, a directory of doctors who specialize in mitochondrial diseases and research, current clinical trial information, support, and more.

Get a Diagnosis

Diagnosing mitochondrial disease is difficult, and a diagnosis may still take years and involve many specialists. Learn more about diagnosing mito, find a doctor who specializes in mito, and get our New Patient Kit.

Learn More

Find Patient & Family Support

It’s a difficult time, but you don’t have to go through it alone. We offer support — from one-on-one calls to group support calls to socials and playdates — to people with mito and their families.

Learn More
Conversation at 2022 International Metabolic Conference

Learn More About Mito

Looking to learn more about mitochondrialRelated to the mitochondria. disease? Our Monthly Expert Series and our Energy in Action Podcasts are good places to start learning about a range of topics related to mitochondrial diseases, including current information on diagnosis, symptoms, treatment, clinical trials and day-to-day living with mitochondrial disease.

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Get Involved with the Community

There are plenty of opportunities to get involved with mito. Make a donation, start volunteering, become a MitoChampion or start advocating in local and national policy issues.

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Upcoming Events

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May 21
7:00 pm

MitoChampions Meeting

May 22
12:00 pm - 1:00 pm

FAOD Support: Exploring the Younger Years

May 23
12:00 pm

Weekly Support Call

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Expert Series

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There are no upcoming events.

Last Presentation

Expert Series: Serial Casting and Toe Walking
Presented April 25, 2025

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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