FAOD Resources

No matter where you are on your journey with Fatty Acid Oxidation Disorder, MitoAction is committed to connecting you with the most comprehensive resources available as well as a network of support. We exist to help you on your journey and to ensure you that you are not alone. Whether you are newly diagnosed, still unsure of your diagnosis, caring for a child living with and FAOD, or a caregiver, family member, or friend, we are here for you. 

MitoAction Resources

• FAOD New Patient Kit
• FAOD Support Calls
• Monthly Expert Series
• MyMito Mobile App
• MitoAction Events Calendar

• FAOD 101
• Disability Benefits & Planning Resources
• Parenting a Child with a Rare Disease Tip Sheet & Resource Page
• Accessible Mindfulness, Meditation & Yoga Resources

Common Labs for FAODs

• Printable PDF of Explanations of Common Laboratory Tests in FAODs
• Laboratory Testing for FAOD in Routine & Emergency Settings – Dr. Nicola Longo

You Won’t Miss the Fat

• Printable PDF of You Won’t Miss the Fat Tips & Recipes
• You Won’t Miss the Fat – Cooking One Meal for the Whole Family – Stephanie Harry & Beth Folcher
• FAOD Family Recipes

Clinical Trial Information

• Reneo Pharmaceuticals – Forward Study
• Ultragenyx – LCFAOD Disease Monitoring Program (DMP)

Kids’ Resources

• Superhero Mask
• You Are a Superhero
• Mito Man Coloring Page
• FAOD Bingo Cards
• Printable PDF of Let’s Cook – Making a Healthy Snack with a Friend
• My Special Body Book Order Form