In Episode 161 of Energy in Action, Marcy sits down with MitoAction’s Stephanie Harry to preview the upcoming virtual FAOD Conference and discuss why it has become such an important resource for patients and families. They explore how the conference is shaped by community needs and highlight this year’s wide range of topics, including gene therapy, emerging research, mental health, pregnancy, and navigating school and adulthood. As MitoAction’s FAOD Program Manager and a parent of a child with FAOD, Stephanie shares how the conference creates a meaningful space for learning, support, and connection.
Episode Highlights
Whether you’re newly diagnosed or have been living with an FAOD for years, finding trustworthy information and connecting with others who truly understand your journey can make all the difference. In this episode, Marcy is joined by MitoAction’s Stephanie Harry to preview MitoAction’s upcoming virtual FAOD Conference and explain why it has become such a valuable resource for patients and families. They discuss how the conference is shaped by the community itself, what attendees can expect this year, and why topics ranging from gene therapy and emerging research to mental health, pregnancy, school, adulthood, and peer connection make this year’s program one of the most comprehensive yet.
Stephanie Harry is MitoAction’s FAOD Program Manager and the parent of a son with a fatty acid oxidation disorder. Drawing on both lived experience and years of advocacy, she has helped grow the annual FAOD Conference into a collaborative event that brings together patients, caregivers, researchers, and clinicians from around the world. Whether you’re looking to learn, ask questions, or simply connect with others who understand life with an FAOD, this episode offers a helpful introduction to everything the conference has to offer.
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