ENERGY IN ACTION – EPISODE 037
The Patient Teacher Program
Jake Athoe is a graduate of Boston University, where he earned a Bachelor of Arts in Biochemistry and Molecular Biology, with a minor in Public Health. During his time at BU, Jake’s interest in metabolism and genetics led him to a four-year research assignment in a lab focused on mutation’s in the energy production of carcinogenic cells. Jake’s graduate work to date has been at the Boston University Medical School, where he studied Genetic Counseling. This program included an intense two month internship working with the medical staff at Washington Children’s National Hospital on pediatric and metabolic disorders. Currently, Jake is advocating for patients with rare genetic metabolic disorders.
Can you share details about the patient-teacher registry program and how people can get involved?
We hope to raise awareness for people that don’t have that voice and we want to raise that voice for anyone that doesn’t have it. People can get involved by going to our registry page on the VMP Genetics website. Patients, parents, and anyone can be involved. We hope to also involve practitioners, nurse practitioners, nurses, students, genetic counselors and doctors.
What are some of the stories that you’ve been hearing from patients?
It feels like a lot of patients have not heard their stories told by anyone. And they end up in the emergency rooms with nurses and physicians who don’t have their stories told, and that’s what we want to change.
CONNECT WITH MITOACTIONDate: 12/01/2021