To work or not to work…that is the question
Many adults with mitochondrial disease face a difficult decision about how to financially support themselves while balancing the energy demands and potential health toll of having a job. Working also gives many people more than just a paycheck; it can be a way to find gratification, and may be an important part of a person’s identity. When faced with the challenging symptoms of mitochondrial disease, many things, including if and how to keep a job, come into question.
Join us this month with guest speaker Lee Rachel Jurman. All are welcome!
Lee Rachel Jurman is a private disability advocate and case manager with Personal Disability Consulting, Inc. She helps adults living with disabilities and their families navigate the maze of public and private systems, and make informed decisions about living and working with disabilities.
Lee has more than 30 years of experience working with people with a range of disabilities. She was executive director of the Information Center for Individuals with Disabilities, a statewide non-profit Massachusetts agency for 6 years. She subsequently led a national corporate disability consultation and referral program at Work/Family Directions for over 9 years. Ms. Jurman has worked in a number of publicly funded community programs, and understands the services and systems available to people with disabilities. She has been in private practice since 2002, bringing compassion, experience, and a determined approach to identifying and securing the resources her clients need.
Lee is a summa cum laude graduate of Ohio University, with a Bachelor Degree in Music Therapy. She has a Master in Management of Human Services from the Florence Heller School at Brandeis University.
Lee is married, with two daughters adopted from China.
Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the importance/challenges of protocol letters within the mitochondrial disease community.