PARENTS AS RARE - EPISODE 073Challenging The Status Quo - Robin Powers Robin Powers is a mother who has a rare disease …
Dr. Neena Nizar – Share Your #RareDiseaseTruth & Give Love A Chance
PARENTS AS RARE - EPISODE 076 Dr. Neena Nizar - Share Your #RareDiseaseTruth & Give Love A Chance Dr. Neena Nizar …
Exploring Palliative Care
Kimberly Matias, a social worker, and Michelle Hurty, a physician assistant, join me for an exploratory conversation …
Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc
PARENTS AS RARE - EPISODE 068Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim …
The In’s and Out’s of the CHOP Mito Clinic
Mitochondrial Medicine at Children’s Hospital of Philadelphia (CHOP) is emerging as the premiere center in the world for …
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