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Day-to-Day with Mito


The Menstrual Cycle as a Vital Sign in Navigating Rare Disease

Join MitoAction and board-certified family physician and Adjunct Associate professor of medicine at Georgetown University, Dr. Marguerite Duane, to explore the impact of the female menstrual cycle as a...


Lessons Learned from the COVID-19 Pandemic in Children with Disorders of Mitochondrial Metabolism

The impact of the COVID-19 pandemic on medically fragile populations, who are at higher risk of severe illness and sequelae, has not been well characterized. Viral infection is a...


Sick Day & Emergency Protocols: Helpful & Potentially Harmful

Join MitoAction and Dr. Mark Korson, VMP Genetics, as he discusses sick days, navigating the ER as a patient, and the importance/challenges of protocol letters within the mitochondrial disease...


Stress Relief for the Holidays

Join Marcelle Longlade; yoga teacher, chronic condition advocate, biomedical engineer, and devoted entrepreneur for a chair yoga session and discussion about relieving some stress during the upcoming holiday season!...


Back to School…IEP’s, 504 Plans and More!

Join licensed school psychologist, Gena Padgett and high school history teacher / FAOD mom, Beth Folcher to prepare yourself for sending your child(ren) back to school by exploring the...


Ultragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient Empowerment

Join MitoAction, Eliza Kruger and Kristin Voorhees from Ultragenyx Pharmaceutical on Friday, May 21, 2021 at 12:00pm EST for our monthly expert series presentation! On this webinar, Ultragenyx representatives will discuss...


IEP Considerations for Children with Mitochondrial Disorders

Join MitoAction and Gena Padgett, a licensed school psychologist for our August Monthly Mito Expert Series presentation titled IEP Considerations for Students with Mitochondrial Disorders.   About the Speaker: Gena Padgett...