I Think I Have Mito. Now What?

We’ve gathered all the basic information in one place, including educational resources, diagnosis information, clinical trial information, and more. Get Started

Need Support on your Journey with Mito?

Call 1-888-MITO-411 to speak with an experienced volunteer, or check out our Events Calendar for upcoming support group meetings.

Register for the 2026 Mito Town Meeting!

The annual mito town meeting is our way of kicking off the new year by sharing all that we have in store for the next 12 months! We will hear from organizations and companies around the globe that have special opportunities, programs, and projects for patients and families affected by mitochondrial disease.
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Finally, an App for Mitochondrial Disease!

MyMito is app designed to help you or someone you care for manage mito. It’s the first and only HIPAA-compliant digital health platform designed for managing life with mito!
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Welcome to MitoAction

MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease. We strive to make a measurable impact in the lives of those who are affected by mitochondrial disease.