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MitoAction

MitoAction

Support, Education, Outreach and Advocacy for Children and Adults Living with Mitochondrial Disease

  • Mitochondrial Disease
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  • Fatty Acid Oxidation Disorders
    • About FAODs
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Stephanie Harry

Nov 30, 2022

Stephanie’s son was diagnosed in 2008 with LCHAD deficiency. She spent her son’s early years educating herself through research, journal articles, work groups, and clinicians. She worked alongside her son’s […]

Hilary Romkey

Nov 30, 2022

Hilary serves as the Director of Programs and Special Events for MitoAction. Hilary strives to bring an innovative approach to programming and to bring an enthusiastic energy to the team. […]

Stephanie Tomlinson

Jan 22, 2021

Stephanie and her son have been part of the MitoAction community since 2007, when they learned of the organization after his diagnosis of Complex III.  She has championed families in […]

Jenevieve Woods

Jan 22, 2021

Contact Jenevieve at jenevieve@mitoaction.org.

Soozi Scheller

Jan 22, 2021

Since 2019, Soozi has been doing Program Support for MitoAction through patient advocacy and research.  She has also taken on the role of MitoSocial Moderator since MitoSocials become virtual.   Soozi […]

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Upcoming
Events

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Jun 4
7:00 pm - 8:00 pm

Traveling with an FAOD

Jun 8
8:15 am - 9:45 am Event Series

FAOD Monthly Support Call

Jun 9
12:00 pm - 1:00 pm Event Series

Weekly Support Call

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Expert
Series

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Upcoming Presentations

  • There are no upcoming events.

Last Presentation

Pyruvate Dehydrogenase, Compassionate Use & Clinical Trials
Presented April 17, 2023

P.O. Box 310
Novi, MI 48376
(888) 648-6228
info@mitoaction.org

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