Adam Johnson is a mitochondrial disease patient & self-proclaimed DadVocate (a dad first & advocate second). He is a lifelong educator who lost his career after receiving a life-altering diagnosis in 2019. Feeling alone, afraid, & helpless, he sought connection with others & began advocating through social media, website, and blog. Most recently, Adam started and hosts a podcast series called Parents As Rare, part of MitoAction’s Energy In Action podcast. He also hosts a MitoAction monthly support call for men in the mito community. His overall motivation stems from the goal to own his story while supporting others along the way, including his children, family, the rare disease community & other parents facing similar challenges.
Past Expert Series Presentations
